• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

You (and anyone else you want to invite) is invited to my virtual #MillionsMissing Day of Change.

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What we need is if you are:

* a person with CFS/ME
please consider taking a photo of yourself or your shoes with one of the posters (http://millionsmissing.meaction.net/wp-content/uploads/2018/04/18_MEAction_Poster_V2_LOWkf.pdf) or with your own sign/note (can be handwritten).

Some ideas of things to include in your sign/note:
– A message directed at the target of your country’s protest (in the U.S., that would be NIH director, Francis Collins);
– Your location – #CanYouSeeMEnow in San Diego, CA;
– Our hashtags – #CanYouSeeMEnow, #MECFS and #MillionsMissing
* a family member or a friend of someone with CFS - hold up a note letting people know how you miss them. We miss you - we miss being with you, talking to you, being a part of the family.

AND then post the photo on my event https://www.facebook.com/events/902263099954183/ - you don't need to go anywhere :)
 
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Great news! The Open Medicine Foundation https://www.omf.ngo/ is co-sponsoring this #MillionsMissing Day of Action with me! The mission of the Open Medicine Foundation is to:

* Invest in accelerating collaborative medical research to find effective treatments and diagnostic markers for ME/CFS and related chronic complex diseases.

* Keep the community informed by disseminating information on current research projects and results

* Bring together thought leaders from around the world to brainstorm and set up targeted initiatives to tackle difficult-to-treat diseases

* Encourage and engage the patient community to take an active role in their own healthcare

https://www.omf.ngo/donate-to-the-end-mecfs-project/