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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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XMRV/XAND Info Center Now Up on Phoenix Rising


Phoenix Rising Founder
The discovery of the XMRV retrovirus in most chronic fatigue syndrome (ME/CFS) patients appears to be a demarcating point in the history of
this illness. The publication of the study in Science, the most prestigious scientific journal in the world, by a stellar cast of researchers from the National Cancer Institute, the Cleveland Clinic and the Whittemore Peterson Institute prompted a flood of stories across the major media outlets and scientific publications including Nature, Scientific American, the New York Times, (two articles), NPR, Fox News, LA Times, etc.

Amid concerns that the blood supply was contaminated the NIH officials announced they'd already held a conference on the issue. The Whittemore Peterson Institute rapidly conferred a new name for what it believes are a cadre of XMRV diseases - XAND (X Associated Neuroimmune Disease).

Questions were quickly raised concerning prevalence, transmission, testing, treatment, etc. Much is still unknown about this new finding with news coming in almost daily. Please post comments/suggestions to me using the contact box on the above left top of the page or at phoenixcfs@gmail.com.

Check out the below sections for more information on this startling find. The first page - a very long - contains an overview of what I've learned thus far. Much of it, of course, is subject to change.

Immense congratulations and thanks, of course, go to the WPI.

Thanks to the Phoenix Rising Forums as well for being a fount of information and for discussions with Aftermath, DM and others.



Thank you very much for your relentless help and support Cort, we all hugely appreciate it.