Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To register, simply click the Register button at the top right.
Sounds like CFS M.D.s are getting lower rates of XMRV than on this board. Here is Cindy Bateman's group:
You are apparently saying that her group tests positive for XMRV using VIPdx at only about a 10% rate. And that could be within the range of normal after culture test ratios for the general population come in.
Funny how as the data firms up, folks from this forum seem so close to the data in the original Science article, but M.D.'s with active CFS patients have much lower ratios. This is going to get interesting.
I guess it's possible that those with positive tests would be likely to google XMRV, end up at this site, and vote.
There could be some self-censorship amongst members getting negative results.
I hadn't thought that if only 10% of CFS patients had XMRV, that would be close to normal. Durr.
I had an email from a Cheney patient. She was positive on both VIP tests. She said that all 13 of the Cheney patients that had been tested around her time were positive for ONE of the tests
(no other data sorry)
It makes sense; recent virus, slow replication, little genetic variability - it doesn't look like a virus that thats been around a long time.
A word of caution - I just talked to someone who attended the OFFER conference in Utah. Dr. Bateman said 10% of her patients looked like the patients in that study - they were not typical as has been said many times. Only time will tell.
The way the english reads to me is that Dr. Bateman is saying in her collection of patients 10% look like WPI's collected sick patients. There is nothing in that statement indicating her entire patient collection has been tested and she's finding 10%.
The full article text is available to Science subscribers, American Association for the Advancement of Science members; one-day access to the AAAS site can be purchased for $15.00.
I have been suspicious of the XMRV as a cause of CFS/Fibro from the start, and now that 3 or 4 months have passed since the announcement, without confirmation of those results, and with the German findings [not finding XMRV], I am even more convinced that there is nothing to it.
I don't know. I didn't look while the blood was drawn.How many tubes did you send the second time?
I had squamous cell carcinoma on base of tongue. I also have prostate cancer, although it does not appear to be the aggressive kind mentioned in the XMRV studies.may i ask what type of cancer you had?