- Messages
- 7
- Location
- Northern California
Hi I am new to the site and this is my first post so may not be doing things correctly
My question is to anyone who has had XMRV testing done. Were any of you on Valcyte and/or Famciclovir? I just sent in blood work for testing and I am getting conflicting info from the lab and drs in the know about how accurate the testing is, if you are taking antivirals (not antiretrovirals). I decided to proceed with the culture anyway and see what happens. If it is negative, I will have the serology test done. Since the culture takes 4-6 weeks, hopefully the serology test will be out by then. The feedback I am getting is that the serology testing does not give as many positive results as the culture does.
I have been on Valcyte and Famciclovir for about 18 months and at first had a fairly good response at about 6 month. (CMV titers went from 276 down to 100) Then at Christmas I went thru some fairly intense stress and bottomed out again - down to 10 - 20. Slowly I have made it up to about 30 but now have stalled and just bouncing up and down between 20 and 30. Titers are still around 190. Also have EBV but those titers are so-so. I know this story sound familiar to so many.
Thanks
My question is to anyone who has had XMRV testing done. Were any of you on Valcyte and/or Famciclovir? I just sent in blood work for testing and I am getting conflicting info from the lab and drs in the know about how accurate the testing is, if you are taking antivirals (not antiretrovirals). I decided to proceed with the culture anyway and see what happens. If it is negative, I will have the serology test done. Since the culture takes 4-6 weeks, hopefully the serology test will be out by then. The feedback I am getting is that the serology testing does not give as many positive results as the culture does.
I have been on Valcyte and Famciclovir for about 18 months and at first had a fairly good response at about 6 month. (CMV titers went from 276 down to 100) Then at Christmas I went thru some fairly intense stress and bottomed out again - down to 10 - 20. Slowly I have made it up to about 30 but now have stalled and just bouncing up and down between 20 and 30. Titers are still around 190. Also have EBV but those titers are so-so. I know this story sound familiar to so many.
Thanks