Simon Wessely, is Professor of Psychiatry at King's College London. We have as much chance of this being a fair, unbiased study as we have of sprouting wings and flying to the moon. I expect this study is being implemented to discredit the WPI findings.
What will the criteria be for selecting patients? Will, as usual with M.E./CFS research in the UK, the patients with neurological M.E. be weeded out and only those without M.E. but with mild mental disorders be left to study.
Min is correct I'm afraid.
Wessely's choking odour reaches far and wide in the city of London. UCL contains the National Hospital for Neurology and Neurosurgery. The best neuro hospital in europe, and even the world.
Who is going to believe what you say, if you go to the best, and report it's garbage? It is the best state hospital for sure, but not if you have ME, GWS, MCS etc - then it's the worst.
I do commend the OP you for finding the research and trying to help. One must remember that something is rotten in the state of Denmark though - and this starts and ends with those who work in the NHS for the state. A state health care system that denies all care for people with severe neuro immune disease since day one, isn't going to change. There are too many people like me preparing court cases for them to admit they were wrong and had a hidden agenda. CFS/ME will remain mental illness, and possibly XMRV will become XAND. And the genuine ME patients will becomes XAND patients and we will be expected to say nothing and accept the torture of the present and past
UCL is renoun for abusing patients with severe ME in the name of 'Neuro Psychiatry'. (Note I say severe). Severe people cannot get off the bed and walk, protest. They remain static.
They held me in UCL in a unit there, along with other people (not when I was there) due to our 'belief' we have ME. This was because we were bed bound, and not able to work. Work is all they talk about. Do you have a 'recovery plan'. Why not? Why don't you work? Our patients recover in a few weeks with CBT/GE/Pacing, why don't you? That kind of thing.
It's nothing like you'll ever experience because it's done behind closed doors. The rest of the patients are drugged and mentally ill - they won't defend you, at best they ignore you, at worst, they attack you. You're on your own behind a magnetic locked door. With no access to medical care (doctor). If you get chest pain and can't breathe - they leave you in the room on your own. No joke. Try that for size guys. We are used to going to ER in an emergency, not having 'Nurses' (not real nurses) walk off or tell you it's all in your mind, as they do in UCL.
They altered my 14+ year history at the time of severe ME to 'Somatization Disorder' and told me to my face NEVER to use 'that word on this ward'. ''ME''.
I have never before had such agression that when I say ME, someone holds their hand up infront of me, like a stop sign. Totally bizarre yet very scary when you're unable to sit upright in an open ward,
sleep, or get food or water. They adore watching you attempt it, it amuses them. It 'prooves' you're a malingerer because you do it, as you need to survive.
Simon Wessely's CBT expert was drafted in from Kings to UCL to 'cure' me with CBT by challenging 'Automatic Negative Thoughts'. So our point is, that if this is what goes on in UCL - their 'CFS' patients will be people who are mentally ill, and report chronic long term tiredness. Chronic long terms tiredness is the DOH/NHS definition of 'CFS/ME'. It's on the NHS website. NHS Choices. Look yourself.
Don't expect this XMRV study to be on our side at all. Why would they admit that mentally ill 'ME' patients have been infecting the national blood supply and abused by their OWN HOSPITAL?
No way is that going to happen. UCL is so corrupt they claim me of self discharging. How can a severe ME patient walk out of a hospital in a strange city with no transport? Insane. More
insane is they leave my discharge note in my medical records - thus proving I didn't self discharge. They write what they like, as they hope you'll die before you find out.
I say these words, because when someone can look you in the eye, who works at UCL (where this research is done) and tell you that if they kill you, they'll 'apologise' then you know - the game is up, and you realise crystal clear what is happening. Imagine that for 8 weeks and you cannot get of the door. Imagine being threatened, called a 'fool' to your face infront of the whole staff, having people withdraw medical care when your blood pressure is over 100 diastolic, pulse 170 when in pain. They literally, walk away from you,
Only a psychiatric ward can do this, in a normal NHS ward you can complain press the emergency buzzer if need be. In these places there are no buzzers, no nurse calls, and no nurses.
There are spies called Psychiatric nurses who in place of a BP monitor hold clip-boards. They stand in your room and scribble down what you say, and write things like 'good appearence, combed his hair, smiled'. Or 'talked about Dr x', or 'Seemed to be having an argument with x'.. etc etc. Nothing to do with medical care, and everything to do with surveillance.
Big brother is watching you, literally. This happens to severe ME patients as we speak - this was for me, only a few years ago, not back in the 80's.
UCL does this, and this is where the research into XMRV will come from into the life-style choice (Their words).. 'CFS/ME'.
People who view us as scum and filth - will hardly produce research that's going to help us. Think about it.
You cannot beat the state and I am as vile as they describe.