Oh my gosh, that's... I still haven't worked out the XMRV congratulations/comiseration post yet. I know how much you wanted to know and I'm glad that the smilies mean you got the answer you were hoping for.
How do you feel? That's an optional question which you don't have to answer. Also, what does your doctor think? If he knows yet. Again, optional, I don't want to pressure you at all.
I am fine with it maybe the answer to an over 20 year puzzle. I was one of the London lot that did the VIPdx test. My Doc was fine about it but at a loss as to what it means and how he can help but no one knows yet.
I am fine with it maybe the answer to an over 20 year puzzle. I was one of the London lot that did the VIPdx test. My Doc was fine about it but at a loss as to what it means and how he can help but no one knows yet.
I know some day I'm going to get tested and I'd be heartbroken not to have my very own retrovirus (grins). So does this mean that the results from the London 500 are in????
No one of a small group who did it private Sorry should of put all this in 1st post but you will understand head not there. Don't want to start on the Wessely stuff as I would get put of the site for the language I would use right now. We (the group tested) did not need this added pressure and I believe that by the timing that it was an attempt at a peemptive strike at us. Will deal with all that later when more able
I am fine with it maybe the answer to an over 20 year puzzle. I was one of the London lot that did the VIPdx test. My Doc was fine about it but at a loss as to what it means and how he can help but no one knows yet.
No one of a small group who did it private Sorry should of put all this in 1st post but you will understand head not there. Don't want to start on the Wessely stuff as I would get put of the site for the language I would use right now. We (the group tested) did not need this added pressure and I believe that by the timing that it was an attempt at a peemptive strike at us. Will deal with all that later when more able
Gee, I just can't imagine why you're not like totally together at what 10 o'clock at night.
Uuuuuuuu, hugs and hugs and bigger hugs. Now tell all. Do you know if anyone else in the group tested positive? Was it a long drive, have you had dinner yet? Have you called all of your friends and family yet?
George
I cannot speak for others so won't comment on that. Going to get tested was a long journey, 7 hours by train but my results were given to me on the phone by my Doc. It is just before 8pm here and I have told all the people I have to.
Trust a dog to think about food - my dinner is in the oven but do not know if I can eat right now. As a cat I am thinking about sleep and how I am going to get some
By the way mods if you can think of a better google catching title Please Change it
George
I cannot speak for others so won't comment on that. Going to get tested was a long journey, 7 hours by train but my results were given to me on the phone by my Doc. It is just before 8pm here and I have told all the people I have to.
Trust a dog to think about food - my dinner is in the oven but do not know if I can eat right now. As a cat I am thinking about sleep and how I am going to get some
By the way mods if you can think of a better google catching title Please Change it
Joyscobby - I just don't know what is the right thing to say. I think you are chuffed to bits......it says something about our history when we are actually pleased to be told we have a retrovirus!
You have probably told us about your illness, blowed if I can remember. Please - for those of us who have few memory cells left - tell us more about onset and symptoms.
Congrats I think and certainly :victory: :victory: :victory: But also
This is a landmark in the history of M.E. I can't imagine how it feels. The more I think about the possible repercussions of your result.........WoW! :victory: :victory: :victory:
Great news Joyscobby! Hopefully this can be the beginning of the end of your ME/CFS. I was also planing to take the test in mid December in London but had to postpone the trip from Sweden. Did you wait long for the results?
Thanks so much for sharing. I know there's not much you can do with this info right now but it means a great deal to those of us who are interested in learning more about the *geography* of XMRV.
It is surreal and mind blowing and it crossed my mind so many times over the years that there might be a retrovirus connection.
long complex history of well over 20 years but main ones
given blood in 1977 after 1st son
had lots of gyne issues (long story)
got chicken pox at 24
tested for coxackie B when diagnosed 1st as PVFS mid to late 80's ( meaning to find out when exactly)
had ups and downs but last 10 years bad and last 2 realy bad.
1st sons healthy 2nd son with learning difficulties and asthma exzema etc
Also dyslexic all my life
went into ME closet around 1990 about started coming out 2 years ago.