Thank you Daffodil for your kind words earlier on.
The XMRV news has made a huge difference to me, not only having the + test but that fact that someone was working on something new.
Those of us who have had the disease a long time were in a difficult position before the XMRV paper was published. We had been trying the many different protocols and treatments for a long time. In some cases they had made us worse and the constant struggle to keep going as we became sicker, old and poorer was terrible. There was nothing new to try.
Although XMRV may not be an answer to everyone or it may just be part of the puzzle, I feel better that the WPI and other organisations are looking at ME/CFS patients.
In the UK it's a huge difference that papers are reporting anything physical with this disease. Even the reports that it "could just" be a passenger virus on an immuno-compromised group is a big step forward in a country that does not recognise immune system problems in patients here.
The XMRV news has made a huge difference to me, not only having the + test but that fact that someone was working on something new.
Those of us who have had the disease a long time were in a difficult position before the XMRV paper was published. We had been trying the many different protocols and treatments for a long time. In some cases they had made us worse and the constant struggle to keep going as we became sicker, old and poorer was terrible. There was nothing new to try.
Although XMRV may not be an answer to everyone or it may just be part of the puzzle, I feel better that the WPI and other organisations are looking at ME/CFS patients.
In the UK it's a huge difference that papers are reporting anything physical with this disease. Even the reports that it "could just" be a passenger virus on an immuno-compromised group is a big step forward in a country that does not recognise immune system problems in patients here.