VillageLife
Senior Member
- Messages
- 674
- Location
- United Kingdom
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thank you Sasha, but now the BBC comment box has disappeared!
Oh! What a pity after you were putting all that work in!
Well you put in all the hard work tracking down the quote, not me! It is annoying though. I was going to say something about "XMRV was first found in cancer patients, so this may have implications beyond just ME patients".
and if its a psychological problem they shouldnt reinforce those illness beliefs by saying pwc are too frail to give blood, they should be saying, yes you can, you can do it!
Here is a link to the BBC Radio 4 "Today" programme from this morning:
http://news.bbc.co.uk/today/hi/today/newsid_9072000/9072494.stm
The mention of a UK blood donation ban for ME patients is at 2:08:04 into the programme (ie just after 2 hours in,) for about 50 seconds and includes a comment from Dr Shepherd at the MEA.
We are not listed in the run down as a major news story, but if you click on the link above and then look down the right hand side to where it says: Friday 8th October, there is a pink 'loudspeaker' button icon which says: "Listen to programme in full".
Click this and scroll to 2hours, 8 minutes and 4 seconds in - and there we are ...
Is it just me or does the interviewer seem to want to get away from the subject very quickly once Dr Shepherd starts to mention causing panic amongst the population etc?