Collecting improvements, until there's a cure.
Well that was nice, and reassuring.The film maker, Rory A Stewart, has left these comments beneath the MEA website coverage of this story:
I am the filmmaker, I would just like to make a few things clearer; she is in recovery and has been housebound, but her mother has not allowed her out despite her improvements. The film is based off of my friend’s recovery (that because of over-exertion or bad luck ended in a very severe relapse that has returned her to a housebound state). I’m very sorry about some of the wording and interpretations of the press so far, I am relatively new to talking about my films to journalists.
I made this film because it breaks my heart that someone as creative and funny and intelligent as my friend is trapped by her own body, with an illness few people know or care about. She is a person with a fantastic sense of humour which is why I could not see this film as anything other than a comedy (with, of course, dramatic elements). The film is not a handbook for dealing with M.E., I cannot guarantee this film will change minds about or perfectly explain M.E.
It is a story about a young woman and her relationship with her mother. There are so many varying experiences of M.E. I cannot represent them all in one short film, only what I know from my own experiences around the illness. I can assure you she is not physically healthier by the end of the film, quite the opposite. As a sufferer of M.E. said to me today on Twitter “living life is a hard urge to resist”, and this is the character’s central problem, how to feel she is “living life” while still looking after her health. Her mother is overbearing and over-protective, but she isn’t wrong. There are of course such shades of grey lost in the interviews.
I can only apologise for the quote from the NFTS about mental illness, that is something I have already requested that they do not repeat and I have publicly disavowed. It was spoken out of an innocent lack of knowledge.
I hope this reply addresses some of the issues that may worry you.
MEA website news section: www.meassociation.org.uk
The trailer is worrying for all of the reasons mentioned above. Having said that, for the first 3 years of my son's home bound period he often said, "I just want to go somewhere." or, "Can we just go on a trip somewhere, anywhere?" He felt that in going somewhere he could escape his illness and misery, leave it at home and go back to the good place. He knew this was illogical, but couldn't shake this urge to escape by going somewhere else. This film's main character seems to have a bit of that urge in her, too. It looks like the main character is nutty, but that seems to be function of the writer/director's style, and if she does wind up more ill in the end, it may send send some important messages. I hope it's a good thing.