I played volleyball for 2 years without too much issue then moved to Canada, basically lived a normal life for about 6 years, ME was very mild, i would crash after an intense bike ride or intense amount of skiing i knew there was something wrong but i could basically live as normal. I even entered some downhill races and won one of them! But then 5 years ago i had a miscarriage, and i'm not sure if its related but i very slowly started to get worse, stated getting crazy sore throats and losing my voice, and then i wasn't recovering well after a weekend of teaching english online, it would take all day Monday to recovered form essentially just sitting in my room chatting to people online, then we renovated our house, and shortly after that I crashed into moderato/severe. I believe the stress of the reno combined with the off gassing of the new materials is what did it. However I do believe the initial insult was way back years before, and my immune system was just waiting for a hit to take me down.
I am hoping there is a sunrise for you again.
I sort of have been living as if I have an expiration date- to do the things I enjoy knowing they might permanently send me to a invisible grave ...sigh, hopefully we can get back to our regular bad again