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what do you think it is, @lansbergen?Standerd bloodtest do not check what I think it is,
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
what do you think it is, @lansbergen?Standerd bloodtest do not check what I think it is,
This discrepancy between the severity of symptoms and the lack of finding anything amiss in normal blood or tissue tests is a characteristic of ME/CFS, and of a number of other diseases, which are collectively called functional disorders. This contrasts to diseases labelled structural disorders, in which there are clear visually or physically observable abnormalities (eg, a build up of plaque in the brain of Alzheimer's patients).
Patients understandably don't like the name functional disorder, because some psychiatrists and psychologists have exploited the lack of finding anything structurally wrong in the blood or tissues, and come up with their lazy and crackpot theories that functional disorders must be psychologically caused, and "all in the mind". Which is complete nonsense, but it keeps certain none-too-bright shrinks in employment.
However, in terms of understanding causes, the name "functional disorder' is a good one, because it indicates exactly where the etiology of the disease lies: the cause lies in problems with the functioning of the body, rather that in problems with the structure of the body. And that's why in functional disorders, the cause is not detected by normal visual or physical examination, because there is not much wrong structurally.
For example, if you consider multiple sclerosis, this can be classed as a structural disorder, because under a microscope you can see the lesions in myelin sheath of the nerves, and it is then immediately apparently why the nerves cannot function properly in MS.
But you generally don't find any structural pathologies in ME/CFS (although some severe cases do sometimes show a few brain lesions). So it is assumed that the cause of ME/CFS must be functional, meaning there must be problems with the way that the body operates.
One excellent candidate for the functional cause of ME/CFS is autoimmune attack. If your immune system is creating antibodies that attack and disrupt the micro-machinery inside your cells, and antibodies which attack and disrupt receptors on the cells which receive signals, you will generally not see any of that going on under the microscope, and nothing will look visually and structurally wrong, yet such an autoimmune attack may be profoundly altering the functioning of the body, and thereby causing severe disease.
It seems that governments have done the math and decided that the cost of accurately diagnosing and treating people with ME/CFS is higher than the cost of just having us drop out of the economy and depend on social assistance.
They haven't done the math. The current actions and policies are a result of ignorance.
The insurance companies in America started a lot of the problem.They are actually scared to do the math. Current action and policies- avoid at all cost or even avoid considering there is a problem.