A lot of us may not look as ill as we actually feel and are. We do not have regular treatment in hospital usually, doctors lose interest when they can't help and whilst we often do not get better and maybe some get worse over time, we do not generally die of this illness. People lose interest after a while because of these things or just never believed you were very ill in the first place.
Agree with other posters also that many people are terrified of illness and like to turn a blind eye to it if they do not live with the affected person and see their day to day reality and when they are at their worst (with crashes for example). And yes, a lack of empathy and understanding by normal healthy people of how this illness feels and that it just continues day after day, month after month and for some patients, year after year.
Agree with other posters also that many people are terrified of illness and like to turn a blind eye to it if they do not live with the affected person and see their day to day reality and when they are at their worst (with crashes for example). And yes, a lack of empathy and understanding by normal healthy people of how this illness feels and that it just continues day after day, month after month and for some patients, year after year.