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Hello everyone,
I'm new to the forum
(though I've been reading quite a lot).
I was wondering if anyone had any thoughts on what might be going on with me. I've been seeing a functional nutritionist for over a year now. For the first 6 months I was making slow but gradual progress, little by little, but then I got food poisoning and it was downhill from there. My gut was messed up (I had a bit of IBS before anyway), my sleep got worse, tested positive for SIBO, and have been on a protocol for that ever since - antimicrobials and diet. My gut has much improved, there is still a bit to go, but it's getting there.
However, my energy is so much worse. I've gone from being able to go out for up to 3 hours per day to being more or less housebound. Since about August last year, I seem to keep getting what I think are viruses, but it's so subtle, like I'll just have the tiniest of sore throats or maybe cough just once in a day, you can barely tell there's anything wrong, except I'm SO much more tired for no reason- suddenly I can't shower or get dressed, feel like I've been hit by a bus, etc etc. This lasts for days or weeks, and then I'll have a few days or weeks when I feel a little better, and like maybe this is it and I'm starting to improve again, and then another one hits me. This just goes on and on. As I understand, that's part of the ME - when your immune system is so overwhelmed that you don't get the normal symptoms of a cold/virus (I had a full on cold before I got the food poisoning, I was so happy!!) But it's just happening so often now, I can't believe it.
What do you think would be useful to do now? I feel like I'm stuck in such a rut and can't get out, and pretty disheartened with it all given all the work I've done to get well (including a whole lot of relaxation/calming the nervous system stuff). My nutritionist has suggested testing for viruses and mould toxicity (I lived in a room with black mould for a year in 2013, before I got ME), and hopes that healing the gut will make me stronger. She also mentioned Lyme, but these are all incredibly expensive and it's already been a year of paying for tests and supplements that are so pricey - I thought I would at least be improving by now, not worse.
Does anyone have any thoughts on what to prioritise, or if I'm missing anything?!
I'm new to the forum
I was wondering if anyone had any thoughts on what might be going on with me. I've been seeing a functional nutritionist for over a year now. For the first 6 months I was making slow but gradual progress, little by little, but then I got food poisoning and it was downhill from there. My gut was messed up (I had a bit of IBS before anyway), my sleep got worse, tested positive for SIBO, and have been on a protocol for that ever since - antimicrobials and diet. My gut has much improved, there is still a bit to go, but it's getting there.
However, my energy is so much worse. I've gone from being able to go out for up to 3 hours per day to being more or less housebound. Since about August last year, I seem to keep getting what I think are viruses, but it's so subtle, like I'll just have the tiniest of sore throats or maybe cough just once in a day, you can barely tell there's anything wrong, except I'm SO much more tired for no reason- suddenly I can't shower or get dressed, feel like I've been hit by a bus, etc etc. This lasts for days or weeks, and then I'll have a few days or weeks when I feel a little better, and like maybe this is it and I'm starting to improve again, and then another one hits me. This just goes on and on. As I understand, that's part of the ME - when your immune system is so overwhelmed that you don't get the normal symptoms of a cold/virus (I had a full on cold before I got the food poisoning, I was so happy!!) But it's just happening so often now, I can't believe it.
What do you think would be useful to do now? I feel like I'm stuck in such a rut and can't get out, and pretty disheartened with it all given all the work I've done to get well (including a whole lot of relaxation/calming the nervous system stuff). My nutritionist has suggested testing for viruses and mould toxicity (I lived in a room with black mould for a year in 2013, before I got ME), and hopes that healing the gut will make me stronger. She also mentioned Lyme, but these are all incredibly expensive and it's already been a year of paying for tests and supplements that are so pricey - I thought I would at least be improving by now, not worse.
Does anyone have any thoughts on what to prioritise, or if I'm missing anything?!