- Messages
- 8
Hiya fellow searchers! I'm continuing to do well on this protocol, although I get frustrated at the slow improvement sometimes. I can walk a couple blocks fairly easily now, and stand for 10-20 minutes, and do more mild activities (going to the movies or lunch, e.g) than I used to. I find myself doing more little things around the house, too, like dishes or laundry. There's days now when I don't need a nap, but I still lay down an hour just for the rest. I still have one or sometimes two "bad days" a week, where I don't get dressed or shower, but I'm now at least out of bed even on a bad day. I have hopes of starting some mild weight-lifting but I think that may be too much yet; I get profuse allover body sweats when I push things.
My big triumph was to recently go to a concert at a local club. I walked across the parking lot, and "danced" in my seat for two hours, and had a couple drinks like a regular person!! I didn't drive myself, or go to dinner first, etc. and I was damn tired after, but just to enjoy myself and wave my arms around was so much more than I thought I'd ever do again!
Thanks everyone for Naltrexone and Arteminisin clarifications; sometimes I'm a bit glib in my desire to be accessible. Dr. Gonzales turned to naturopathy in response to his Lyme patients, and he specializes in that more than CFS. He does think I have it, but my tests have been borderline, and I think he has "Lyme-colored-glasses". Since the treatment is pretty much the same I don't care.
Someone asked why I think i have leaky gut. I did a blood-sample based allergy test (to food, molds, fauna, etc) and I was pegged as being allergic to like 20 foods, all of which I had eaten in the days before the test. The one food I'm actually allergic to, shellfish, was buried in the "slightly allergic" list. I just recently redid the test hoping that my gut was better, but nope; another 20ish foods, all eaten recently, mostly different than the first test. *sigh*. I tried to get a local Dr. to agree to do a fecal transplant, but no dice. ( I've already had all the lower/upper G.I. stuff done.). I should probably quit coffee but I caaaaaannnnnn'ttttt.
My big triumph was to recently go to a concert at a local club. I walked across the parking lot, and "danced" in my seat for two hours, and had a couple drinks like a regular person!! I didn't drive myself, or go to dinner first, etc. and I was damn tired after, but just to enjoy myself and wave my arms around was so much more than I thought I'd ever do again!
Thanks everyone for Naltrexone and Arteminisin clarifications; sometimes I'm a bit glib in my desire to be accessible. Dr. Gonzales turned to naturopathy in response to his Lyme patients, and he specializes in that more than CFS. He does think I have it, but my tests have been borderline, and I think he has "Lyme-colored-glasses". Since the treatment is pretty much the same I don't care.
Someone asked why I think i have leaky gut. I did a blood-sample based allergy test (to food, molds, fauna, etc) and I was pegged as being allergic to like 20 foods, all of which I had eaten in the days before the test. The one food I'm actually allergic to, shellfish, was buried in the "slightly allergic" list. I just recently redid the test hoping that my gut was better, but nope; another 20ish foods, all eaten recently, mostly different than the first test. *sigh*. I tried to get a local Dr. to agree to do a fecal transplant, but no dice. ( I've already had all the lower/upper G.I. stuff done.). I should probably quit coffee but I caaaaaannnnnn'ttttt.
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