what would you do

[Darran321]

Hi Everyone
Three years ago i was a high level road race cyclist, who would incorporate running and other sports
into my daily life, like alot of people on here i got a virus, fever and severe fatigue,
numerous blood test showed nothing, MRI brain Scan like wise, obviously depression kicked in, very bad depression,
Over the three year period i have managed to come off depression medication, but from day one my symptoms
have never changed i get severe head pressure pain to the sides of my head and middle part of my head, never in the front.
i also get pain in my neck glands these are my only symptoms they last maybe 1hr a day at different times of the day, people question weather i have CFS, but i know it is because everytime i try to exercise,48 hours later the head pressure pain and neck gland pain return and are more severe, i would like some advice as to going
private to see someone or trying a different treatment, i have seen smaill inprovments through cold showers
twice a day, and acupuncture

 

[TenuousGrip]

I'm really sorry. I miss my (road, touring, and MTB) bikes the most.

First thing I thought of when I read your post was if you've been properly tested for the usual suspect infections:

http://www.prohealth.com/library/showarticle.cfm?libid=16277

Have you ?

I wish you all the best....

 

[Darran321]

thanks for the link, will have a good read, yes i believe i have been tested for 90% of them

 

[Dechi]

I don't know where you're from but it might be worth looking into Dr John Chia, in California.

 

[pattismith]

if you try the cold showers, please keep us updated. There was a thread here on the cold stress:

http://forums.phoenixrising.me/inde...ng-fatigue-in-chronic-fatigue-syndrome.43010/

 

[Darran321]

if you try the cold showers, please keep us updated. There was a thread here on the cold stress:

http://forums.phoenixrising.me/inde...ng-fatigue-in-chronic-fatigue-syndrome.43010/

Hi
Yes i get more success from cold showers then any other treatment, for an example, if i feel the pain/ head pressure
pain in neck glands, soon as i get a cold shower lasting 3/4 mins, i can last almost the full day without any pain at all.
i dont know what effect it has on my body but i know 100% it works every single time

 

[Seven7]

Hmm might be the vasoconstriction from cold water, see of you feel worst on dilators ( sun, alcohol,... you can google) and do great on vassocontriction stuff. If so ( like me) I lead a somewhat normal life on vassocotnriction drug ( midodrine+ florinef). This might be a great clue for you!!!!

 

[pattismith]

Hi
Yes i get more success from cold showers then any other treatment, for an example, if i feel the pain/ head pressure
pain in neck glands, soon as i get a cold shower lasting 3/4 mins, i can last almost the full day without any pain at all.
i dont know what effect it has on my body but i know 100% it works every single time

seems great, I will try to try it!

 

[*GG*]

Welcome to the Forum, would be great if you did not have this dreaded misunderstood illness!

I have been riding bicycles for over 30 years now, still do, even though I am moderately impacted. I had the 2 day in a row exercise test done, on a bicycle, back in 2010. I only stopped riding my bike back in 2009 (or was it 2008?) , after suffering a big crash, exacerbation of symptoms!

Not sure why I am not severe like happens to many who continue to push themselves, but I do rest quit a bit as well, sleep 8 to 12 hours a night, take oxygen with my cPAP machine.

GG f

PS Feel free to PM me if I don't respond here, been on this site since 2009, you can find parts of my story all over the place

 

[wastwater]

Maybe you are overdoing it still and need rest,I like cycling and considered getting an electric bike