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What would you do next if they if the found a cure for you?

Messages
49
Looking to the future and trying to be positive, if they found a cure for your/our ME and cured you, what would you do next?

Me, I guess I'd travel a little, which is something I've never really had the chance to do, but I've also vowed, that if they cure me, that I'd get myself fit, train for, and run the "Great North Run", which is a half marathon in the north of England, as I think I was a fairly decent runner before being hit by this plague.

What would be your goals/ambitions be?
 

hmnr asg

Senior Member
Messages
565
Throw all these pills in the trash.
Start cycling and traveling again.
Start reading again.
Start calling all the people I have lost touch with over the years because I couldn't see them or talk to them on the phone.
Adopt five more cats (I learned during my cfs years that I absolutely adore cats).
Career: I don't care anymore. That dream died and it seems so insignificant now. And I'm old anyways. That boat has sailed.
 

Alvin2

The good news is patients don't die the bad news..
Messages
3,036
Train for new lucrative career, write the novel i have always wanted to write, save for the future, travel, date/marry, catch up on life.
Read, i have a backlog of thousands of articles and books.

Also move to a nicer place that is not falling apart, and eat three whole meals a day, everyday!
 

BrightCandle

Senior Member
Messages
1,157
I would go into ME/CFS biological research and advocacy. I would apply my electronics and software skills to devices for diagnosis to get these into labs hands, the nanoneedle got stuck on this and its something I could absolutely get done as a start but given all the papers I have read and the anatomy, DNA/RNA and other knowledge I have crammed in I likely have use beyond just the electronics end of it. I can't go back to life as normal now I have to make progress in the disease as fast as I can manage and if I was cured I'd be working full time on it.
 

hmnr asg

Senior Member
Messages
565
I would go into ME/CFS biological research and advocacy. I would apply my electronics and software skills to devices for diagnosis to get these into labs hands, the nanoneedle got stuck on this and its something I could absolutely get done as a start but given all the papers I have read and the anatomy, DNA/RNA and other knowledge I have crammed in I likely have use beyond just the electronics end of it. I can't go back to life as normal now I have to make progress in the disease as fast as I can manage and if I was cured I'd be working full time on it.

But the supposition is that we already found a cure! no need for research anymore. We can all just ride into the sunset and enjoy our lives.
 

hmnr asg

Senior Member
Messages
565
And then your doctor will remind you that all the Other Stuff that happens Can and Will or Could and Might.
Not ever having to deal with a doctor (at least for a while) would be the best part of getting cured actually. And when I get a serious illness eventually i think im gonna take a trip to belgium or the neitherlands rather than deal with another doctor.
 

lenora

Senior Member
Messages
4,942
Well, that has me stymied @Mouse girl. I'm now 75 and have had this since the very beginning.

I would work hard to visit my daughter in CA, it has been a few years.

So many people we knew have moved or moved permanently (died) that our friends are few. Still, I'm sick of sitting here watching the grass grow and would at least rent a place elsewhere.

I've had good fortune in being able to continue the things I like. Reading, writing, staying in touch with friends far away (I grew up with them) and those still near. Old age is interfering, but that happens to everyone.

It's a magical thought and I hope that most of you would be able to put it to good use. You
 

belize44

Senior Member
Messages
1,672
Looking to the future and trying to be positive, if they found a cure for your/our ME and cured you, what would you do next?

Me, I guess I'd travel a little, which is something I've never really had the chance to do, but I've also vowed, that if they cure me, that I'd get myself fit, train for, and run the "Great North Run", which is a half marathon in the north of England, as I think I was a fairly decent runner before being hit by this plague.

What would be your goals/ambitions be?
Travel is the first thing that comes to mind. My husband has a brother who lives in Scotland, and we have been wanting to visit. I would also start working part time!
 

Seadragon

Senior Member
Messages
805
Location
UK
I'd love to spend a few months in the Caribbean just lying on a beautiful beach and swimming in the sea, eating alfresco and gazing at the sunsets and stars in the evenings.

I'd also like to volunteer to help other people or animals in some way and I'd like to be able to spend proper quality time with people that I care about.

The best thing would be simply feeling WELL and being able to take that (mostly) for granted every day.