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What treatments HAVE ACTUALLY helped?


Senior Member
I've posted this on other threads several times before, so I hope I'm not becoming a bore, but...

I became ill the spring of 1983. After three-and-a-half years enduring a variety of classic CFS symptoms, I began to experience significant improve between 1-2 months after I began a trial of oral Nystatin for the possible "overgrowth" of the yeast candida albicans in the digestive tract.

I don't know if my improvement was merely coincidental with my taking Nystatin (some people do go into unexplained remission), but I doubt it. I had tried other treatments without success, so I also doubt a Nystatin "placebo effect."

Treating candida seems to be helpful in only a small minority of CFS patients. I don't know why. My guess is that, in some people, candida is placing a significant stress on the immune system (quite likely because XMRV has already weakened the immune system). Remove the additional stress caused by candida, and a small minority of patients may slip into remission, possibly because they do not have other significant co-infections.

My guess is that, once you become ill, anything that chronically stimulates the immune system helps to worsen and perpetuate the symptoms.

I wrote more extensively about this in my first post (see link below)...