Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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That's interesting. I always feel I need to add zinc because of my prolactin yet zinc lowers copper.(my copper levels are apparently low)
Same here, low copper and reacted particularly badly to elemental formula. I've recently found from starting taking taurine that I'm not reacting so badly to a lot of things. It has also significantly helped with abdominal pain.Update: my doctor says I need to gain weight and get more nutrition (my copper levels are apparently low) before we try any more medications. Which is a bit of a catch-22 because I physically cannot eat enough to gain weight in my current state. They had me try an elemental formula but I reacted badly to it.
See if taurine helps at allI wish I could find out what the cull print of this is. I can't take anything that could improve my health a bit. It's so freaking frustrating!!
I definitely will. Thank you!!!See if taurine helps at all
Sry, for the late response (have not seen it )@Hd-x Do you still take Cyproheptadine? Thanks for the suggestion!
@Grigor Have you tried any of the MCAS medications such as H1+H2 anti-histamines in combination, or Montelukast to lower Leukotrienes? Cromolyn sodium before meals helps some folks tolerate food better. Several folks on this thread found Gen1 prescription anti-histamines helped them tolerate food, when the Gen2 over the counter didn't work for them.Any improvements yet? I'm now losing weight rapidly. Brrr
Is there a way you can get some of those meds compounded. Some folks have a corn and or milk allergy that affects so many medications and so they have to get the medication compounded with ingredients they tolerate. @Learner1 has posted many times about this subject such as in this post@wigglethemouse problem is I don't tolerate the smallest crumbs of medication. I tried them.... They all work. Also the POTS meds but have to stop because of the severe reactions. Ugh.