I can't agree that CFS is much more unbearable than other illnesses. It is a horrible illness to have, but there are plenty of other illnesses that wreak havoc and destroy lives. It seems rather petty (not calling you petty- using it as a generalisation) to 'compare' illnesses. Each illness is horrible in their own way. Just my thoughts though
These are the things that I think make CFS a hard eddged illness:
1-First, and foremost, prejudice (what I mentioned above);
2-I used to be a smart person and a straight A student, but now I can't remember how to spell my middle name;
3-The Fatigue and the Pain of course;
4-The belief that people, including scientists and doctors, will continue to not believe we are really sick; and, thus, better treatments will never be found or used;
5-Dreams and goals being taken away, and;
6-The loss of a "social life"