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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I also heard sulphate deficiency can cause leaky gut. Epsom salt baths or rubs, foods rich in sulfur, MSM, could help.
Karin
I have actually read sort of the opposite - that many of us cannot properly process these, and as a result they biuld up in our bodies and are toxic and can CAUSE leaky gut......I also know that personally I absolutely cannot tolerate MSM - had horrible reactions to it
aloe is supposed to be very healing for the gut as are licorice and glutamine
Karin already said the most important things. Larazotide acetate is definetly the best and only drug to treat leaky gut. However it is not available yet.
Hopefully once the drug will be available for Celiac, it will become easier to show that it is helping other conditions as well, simply because the drug will be available off-label, and studies will be done.
One thing to keep in mind too is that Larazotide taken orally would work only on the gut, I think. It would not work on the BBB. Leaky gut is a major issue in autism, but unfortunately, not only the gut is leaky in this condition but the brain/blood barrier as well. I wish there would be a drug available to close this one as well. This is devastating in autism, since the brain is not shielded from immune reactions hapening elsewhere in the body and you get brain inflamation, cross-reactions with brain proteins, etc... But closing the leaky gut would help a lot nevertheless by decreasing the amount of 'crap' pouring from the gut into the blood and overloading the immune system and the detox systems, kidneys and liver, and of course polluting the brain. At least, this is the way I see it, after spending almost four years working very hard on my son's gut and seeing with my own eyes the incredible effect it had on his brain function (he has autism).
I am sure some amount of leaky BBB is also happening in CFS.
Do you know anything about how to reduce a leaky BBB? Btw I have exactly the same digestive problems as your son.
I really want to know what is causing all these problems. I want to know the cause for leaky gut and the cause for a disrupted BBB. I want to know where it all starts or if there really is a common starting point that makes the immune system go haywire. I read that scientists try to make the BBB permeable for a short period of time through medication to get other needed medication into the brain and I also read that a leaky BBB could be a cause of Alzheimer but I'd love to see XMRV as causative agent. All we can do right now is just prevent some damage but we don't get healed.
Exactly my thought. Something is causing leaky gut, leaky BBB and leaky lungs, and that might be the source of all the problems. Look at all this increase in food allergies, asthma, depression, bipolar, celiac, autoimmune, in the general population.
I believe this is a MAJOR component is CFS and alot of health issues in humans.
What does de meirleir recommend?
any thoughts?
No pun intended either but please tell me why the majority of my friends and majority of people I see walking and talking on the streets seems perfectly healthy. The same at university. I know some medical students who have to work 14 hours a day in hospital and only eat sweets and pizza and drink coke. They are perfectly healthy and their bodies seem to be perfectly adapted to this kind of food. Sure, maybe later they get the consequences but right now they are doing very good despite the fact that they only eat "garbage". None of them has a "leaky gut".