MartinK
Senior Member
- Messages
- 388
Hi all. I would like to seriously look into this topic and find out the causes that could have been behind my amazing improvement.
Wish it would help more of us...
Long story short: I experienced crazy sleep deprivation after the wrong sleep medication. I thought it was my end, but it ended up causing the biggest improvement in my ME/CFS that we have ever experienced.
After 14 days with minimal sleep (1-2 hours, maximum 3 hours) I started getting amazing waves of energy.
Their effect was increasing, PEM disappeared, other symptoms also disappeared, such as severe pain, massive burning sensations, fatigue. And I still only slept 3 hours!
Over the next 14 days I went from very severe to moderate. Sleep also started to improve.
Living almost normally again was wonderful. It lasted for 2,5 months after that the symptoms started to return.
I want to challenge you all - please, let's discuss, let's find out what changes occur in the body during sleep deprivation.
Maybe it's a chance to find improvement for more of us. I'm terrified of trying to induce sleep deprivation again. But what if it is possible to get benefits even without it, when we come to see what mechanisms and changes it causes?
My ideas:
- it change chemistry in brain (as if the brain stops sending faulty signals to the nervous system, which causes a cascade of symptoms)
- immune system suppression (another idea, but in my case I tried some immune suppressants without success in past (Rapamycin, Methylprednisolone))
- change in hormones (however, in my case, I never noticed a hormonal imbalance)
*btw. I'm one who have some benefits benzos, pregabalin and tianeptine - that's why I lean mainly towards changes in the brain
Can some scientist help us with this? Who to contact?
Thanks everyone in advance!
Martin
Wish it would help more of us...
Long story short: I experienced crazy sleep deprivation after the wrong sleep medication. I thought it was my end, but it ended up causing the biggest improvement in my ME/CFS that we have ever experienced.
After 14 days with minimal sleep (1-2 hours, maximum 3 hours) I started getting amazing waves of energy.
Their effect was increasing, PEM disappeared, other symptoms also disappeared, such as severe pain, massive burning sensations, fatigue. And I still only slept 3 hours!
Over the next 14 days I went from very severe to moderate. Sleep also started to improve.
Living almost normally again was wonderful. It lasted for 2,5 months after that the symptoms started to return.
I want to challenge you all - please, let's discuss, let's find out what changes occur in the body during sleep deprivation.
Maybe it's a chance to find improvement for more of us. I'm terrified of trying to induce sleep deprivation again. But what if it is possible to get benefits even without it, when we come to see what mechanisms and changes it causes?
My ideas:
- it change chemistry in brain (as if the brain stops sending faulty signals to the nervous system, which causes a cascade of symptoms)
- immune system suppression (another idea, but in my case I tried some immune suppressants without success in past (Rapamycin, Methylprednisolone))
- change in hormones (however, in my case, I never noticed a hormonal imbalance)
*btw. I'm one who have some benefits benzos, pregabalin and tianeptine - that's why I lean mainly towards changes in the brain
Can some scientist help us with this? Who to contact?
Thanks everyone in advance!
Martin