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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Every time i have a PEM setback i get increased hypoperfusion in either my muscles or various organs, most times the effects have not reversed. What causes this?
The lymphatic system has also been, fairly recently, likened to a mobile brain.![]()
My hypoperfusion is from oi and the effects are reversed everytime i lay down for an hour plus. I feel the muscles relax after I've been down that long. My hr normalizes too.
I'm not familiar with pwcs getting steadily worse from pem or hypoperfusion. Not to worry you but have you been evaluated for other illnesses. Maybe ms?
I became ill with cfs in 1990 after a virus caused chronic congestion. Fwiw, I may have been given flouroquinolones and those did me in. Not a mystery virus.
Since changing my diet in 2005, I heal from injuries much faster. But I'm a celiac who was eating gluten all the time so my body didn't have the strength to heal. Imho, Elisabeth Hasselbeck's story demonstrates this easily.
My health has improved dramatically in recent years just not the oi, pem or hypoglycemia or possible cfs bug?
Tc ... x
Every time i have a PEM setback i get increased hypoperfusion in either my muscles or various organs, most times the effects have not reversed. What causes this?
@xchocoholicTo the best of my knowledge i havent. How do i go about doing this?