I have been reading here for a while now and I'm really wondering whether everyone has very good and very bad days, as I do. It sometimes seems like other people are more constant.
When I have a really good day, I can do a lot (not like normal people, but still). I don't seem to have trouble actually doing something, but the pain and illness that comes afterwards is horrible. Sometimes is lasts for a day (if I did something small), sometimes it lasts for 5 days.
In the moment that I'm actually doing something and my heart rate is up, I feel a lot better. I feel better until I sit down and my heart rate comes down and I start feeling awful in about 5 hours. This tricked me into constantly doing something, even though I had to pay the price the rest of the week.
Does anyone else feel better when they do something active? (during, not after )
Does anyone else have such a difference between good and bay days?
When I have a really good day, I can do a lot (not like normal people, but still). I don't seem to have trouble actually doing something, but the pain and illness that comes afterwards is horrible. Sometimes is lasts for a day (if I did something small), sometimes it lasts for 5 days.
In the moment that I'm actually doing something and my heart rate is up, I feel a lot better. I feel better until I sit down and my heart rate comes down and I start feeling awful in about 5 hours. This tricked me into constantly doing something, even though I had to pay the price the rest of the week.
Does anyone else feel better when they do something active? (during, not after )
Does anyone else have such a difference between good and bay days?