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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@Cohen2, the darkest hours for me are around 4-6pm. Then usually the worst symptoms lift around 10pm. Does that sound similar to you?
I had this last night. Fell asleep at 4am. Actually, I didn't really crash today, but I suspect it is because I have been sleeping okayish on other nights and my health is a bit better at the moment. But it might catch up with me tomorrow or the next day.I get this sometimes but then I crash big time late afternoon
Lack of sleep can not be a favorable life. It will kill you faster than not eating. But not staying hydrated is even faster.
Apparently, 3 hours for you is still enough to stave off Zero.
Yes, it makes total sense!By getting up earlier than my usual midday my symptoms aren't as bad in the first few hours. Hope that makes sense
That's an interesting thing you state - I often wake up around 4am every night. I KNOW I feel alot better than when I go back to sleep & wake up around 9am. In fact, I tend to feel terrible if I wake up later by having MORE sleep. I have been toying with the idea of getting up (at 4am) & doing stuff & maybe going back to sleep when I crash or get massive dizziness &/or 'jelly legs' (usually blood sugar crash).Wonder did they ever test cortisol antibodies or such a thing exist.
For definite, something happens in sleep that creates the fatigue that by getting up at 4am avoids.
Must be a relationship.
That's an interesting thing you state - I often wake up around 4am every night. I KNOW I feel alot better than when I go back to sleep & wake up around 9am. In fact, I tend to feel terrible if I wake up later by having MORE sleep. I have been toying with the idea of getting up (at 4am) & doing stuff & maybe going back to sleep when I crash or get massive dizziness &/or 'jelly legs' (usually blood sugar crash).