• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Webinar: POTS & Ehlers-Danlos Syndrome Research Update, 25th Sept 2017 - Dysautonomia International

From their Facebook post, https://www.facebook.com/DysautonomiaInternational/posts/1405548382877370. This webinar is happening Monday 25th September, 7.00 to 8.00PM Eastern.

Join Dysautonomia International for a free webinar reviewing recent research that explores the differences and similarities between postural orthostatic tachycardia syndrome (POTS) patients with and without Ehlers-Danlos Syndrome (EDS). Register here: http://bit.ly/EDS_POTS.

This webinar will be led by Lauren Stiles, Dysautonomia International President. Lauren teamed up with POTS researchers at the Vanderbilt Autonomic Dysfunction Center and the University of Calgary to survey over 3000 patients as part of the Big POTS Study. She will review some of the POTS/EDS related data, as well as other interesting information we have learned from the Big POTS Study so far.

If you cannot attend the live presentation, you can still register for the webinar to receive an email of the webinar recording when it becomes available.

ETA: Correcting mix up on date.
 
Last edited: