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With his son terribly ill, a top scientist takes on chronic fatigue syndrome - The Washington Post
by Miriam Tucker
Terrific article about Whitney Dafoe, his father the Stanford scientist Ron Davis and the lack of research funding.
The basic scientific approach:
by Miriam Tucker
Terrific article about Whitney Dafoe, his father the Stanford scientist Ron Davis and the lack of research funding.
The IOM report notes that doctors often lack understanding of the condition and are often skeptical that it is a true medical condition, believing instead that it’s partially or wholly psychological.
Some may therefore be surprised that the illness is now a major research focus for one of the world’s leading biomedical scientists.
That scientist, Ronald W. Davis, is Whitney Dafoe’s father.
The basic scientific approach:
Ron Davis said:“It’s probably the last major disease that we don’t know anything about. . . .
...“My plan is to collect more data on a group of patients than has ever been collected on a human being before, by orders of magnitude. . . . We’re going to be state-of-the-art on everything,” Davis says.
Whitney's sister said:“I used to talk to him every single day, and I now can’t even make eye contact or give him a hug. . . . He’s still there, but I’m grieving for him like a death,” Ashley, 27, said at the fundraiser.
“He used to say, when he could still talk, that he wished he had AIDS or cancer, because then people wouldn’t tell him that there was nothing wrong with him and he would at least know what was wrong with him.”
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