I saw a specialist in VCD yesterday as my Respir Cons thought the constant voice loss and some other stuff was probably VCD and not just the asthma or other breathing stuff (orthostatic)
The woman I saw was very good. She took a full history, was fine about my reading research and then I had the lovely camera up nose down throat experience. She was amazed at how bad it was down there. Sometimes it takes a while to get a dx apparently but it was very obvious - thankfully as once is enough with that camera thanks!
I was (thankfully) able to give a precise history showing I know the difference between the asthma stuff and the 'all in my throat' stuff.
I seem to have EERD as well (extra-esophagal-reflux).
Interestingly as she was explaining VCD to me she mentioned "fight and flight" response - that is ans related. So it seems its more dysautonomic stuff. She didn't know about dysautonomia- IST, Hyper POTS but was interested in the research I mentioned.
Anyone else had a dx of VCD or have symptoms?
I'm to start therapy in Nov which will help manage the thing but with the ANS response problem won't cure it.
The woman I saw was very good. She took a full history, was fine about my reading research and then I had the lovely camera up nose down throat experience. She was amazed at how bad it was down there. Sometimes it takes a while to get a dx apparently but it was very obvious - thankfully as once is enough with that camera thanks!
I was (thankfully) able to give a precise history showing I know the difference between the asthma stuff and the 'all in my throat' stuff.
I seem to have EERD as well (extra-esophagal-reflux).
Interestingly as she was explaining VCD to me she mentioned "fight and flight" response - that is ans related. So it seems its more dysautonomic stuff. She didn't know about dysautonomia- IST, Hyper POTS but was interested in the research I mentioned.
Anyone else had a dx of VCD or have symptoms?
I'm to start therapy in Nov which will help manage the thing but with the ANS response problem won't cure it.