Viral infections- Really

[Martin aka paused||M.E.]

hi community
got these test results from a lab in Munich which says there are viral infections. But we have probs to find any. Are there other explanations for these values?
@leokitten @Hip
@Push Fwd
Thank you!

 

[lenora]

Hello @Martin aka paused||M.E. I'm sorry that you're still so ill. I can't make heads or tails out of the results, but perhaps others here can.

Just wanted you to know that I'm thinking of you and I'm still wishing for better days for you. Yours, Lenora.

 

[Hip]

got these test results from a lab in Munich which says there are viral infections. But we have probs to find any. Are there other explanations for these values?

I don't have any background knowledge for interpreting your results, but it looks like they are examining your levels of interferon, which are high, suggesting a viral infection going on.

Have you been tested for all the usual viral suspects in ME/CFS, using the appropriate tests?

The usual suspects are:

Coxsackievirus B
Echovirus
Epstein-Barr virus
Cytomegalovirus
HHV-6
Parvovirus B19
Chlamydia pneumoniae

For coxsackievirus B and echovirus, Dr Chia finds only a neutralization-type antibody test is sufficiently sensitive to detect the chronic but low-level infections found in ME/CFS.

IMD lab in Germany offer neutralization antibody tests for these two viruses. From my roadmap:

• IMD Lab in Germany provide individual antibody neutralization tests for CVB3, CVB4, CVB5 and EV6, EV30. These tests cost €34 each. The staff at IMD lab speak English. There is an IMD test offering CVB4, CVB5, EV6 and EV30 together (but not CVB3).

• Institute of Medical Virology, University Hospital Frankfurt am Main in Germany provide individual antibody neutralization tests for coxsackievirus B1, B2, B3, B4 and B5, and echovirus 4, 6, 7, 9, 11, 25 and 30. These tests cost €34 for each serotype.

 

[godlovesatrier]

I found out the other day you can book and then walk in to have your blood drawn at IMD. So if you can afford the ~200 to 300 EUR then you should be all set to go and get it, assuming you can travel that is

 

[Martin aka paused||M.E.]

I found out the other day you can book and then walk in to have your blood drawn at IMD. So if you can afford the ~200 to 300 EUR then you should be all set to go and get it, assuming you can travel that is

I’m 100% bedridden

 

[godlovesatrier]

Ok alternatively you can get imd to post you the pack and when it arrives at your house if you can afford to a mobile phlebotomist can be hired to come to your house and do all the bloods. Then you just have to get it posted same day to IMD. That's what I did last time for my lab tests in 2018. I appreciate the costs and all of that would be super taxing, but just wanted to mention it.

 

[mitoMAN]

hi community
got these test results from a lab in Munich which says there are viral infections. But we have probs to find any. Are there other explanations for these values?
@leokitten @Hip
@Push Fwd
Thank you!

I have the same exact results, about the same levels. No active infections found.
Did some PCRs for lots of money.

I have 1:320 NIT Coxsackie B5 but I doubt thats it.

 

[mitoMAN]

YEAH IMD is super helpful, they come pick up your blood at your house with a courier btw.
So you have to get the blood drawn at a doctor tho, but your family and can then hand it over to the courier.

 

[ruben]

So, I'm in suffolk, UK. If IMD sent me the pack then and a courier came to pick up my blood samples, does anyone know what the total cost would be?

 

[Martin aka paused||M.E.]

I have the same exact results, about the same levels. No active infections found.
Did some PCRs for lots of money.

I have 1:320 NIT Coxsackie B5 but I doubt thats it.

I sometimes doubt that Lab4More is a reliable lab

 

[Martin aka paused||M.E.]

I sometimes doubt that Lab4More is a reliable lab

I got Coxsackie B4 1:480 and it's exactly what I thought have. Fits to the one-week diarrhea in summer before becoming moderate