Cort
Phoenix Rising Founder
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This Poll looks at XMRV Culture tests by the VIPdx lab. This tests determines if your white blood cells carry the virus.
One thing everyone's interested in is whether illness level will effect ones potential for testing positive; ie will severely ill patients be more likely to test positive than moderately ill patients? To get a grasp on that the poll will assess illness level relative to disability on four levels; severely ill, moderate to severe and mild to moderate and mild. Disability levels aren't perfect but they're a start.
This poll tests for a LATENT infection; ie whether the virus can be found inside the white blood cells. While a virus restricted to the inside of cells may not be actively infective it can still disable the cells it is found in and may possibly produce substances that elicit an immune reaction.
These polls are completely private; neither I nor anyone else can determine how anyone voted.
We're going to use Dr. Bell's disability scale. It's a bit lengthy. I highlighted the functional parts of it. This scale is from 'The Doctor's Guide to Chronic Fatigue Syndrome', by David S Bell, pages 122-123.
Dr. Bell's CFS Disability Scale
Healthy
MILD
MILD TO MODERATE
MODERATE TO SEVERE
SEVERE
One thing everyone's interested in is whether illness level will effect ones potential for testing positive; ie will severely ill patients be more likely to test positive than moderately ill patients? To get a grasp on that the poll will assess illness level relative to disability on four levels; severely ill, moderate to severe and mild to moderate and mild. Disability levels aren't perfect but they're a start.
This poll tests for a LATENT infection; ie whether the virus can be found inside the white blood cells. While a virus restricted to the inside of cells may not be actively infective it can still disable the cells it is found in and may possibly produce substances that elicit an immune reaction.
These polls are completely private; neither I nor anyone else can determine how anyone voted.
We're going to use Dr. Bell's disability scale. It's a bit lengthy. I highlighted the functional parts of it. This scale is from 'The Doctor's Guide to Chronic Fatigue Syndrome', by David S Bell, pages 122-123.
Dr. Bell's CFS Disability Scale
Healthy
- 100 = No symptoms at rest. No symptoms with exercise; normal overall
activity level; able to work full-time without difficulty.
MILD
- 90 = No symptoms at rest; mild symptoms with activity; normal overall
activity level; able to work full-time without difficulty.
- 80 = Mild symptoms at rest, symptoms worsened by exertion; minimal
activity restriction noted for activities requiring exertion only; able
to work full-time with difficulty in jobs requiring exertion.
MILD TO MODERATE
- 70 = Mild symptoms at rest; some daily activity limitation clearly noted.
Overall functioning close to 90% of expected except for activities
requiring exertion. Able to work full-time with difficulty.
- 60 = Mild to moderate symptoms at rest; daily activity limitation clearly
noted. Overall functioning 70%-90%. Unable to work full-time in
jobs requiring physical labout, but able to work full-time in light
activities if hours flexible.
MODERATE TO SEVERE
- 50 = Moderate symptoms at rest; moderate to severe symptoms with
exercise or activity; overall activity level reduced to 70% of
expected. Unable to perform strenuous duties, but able to perform
light duty or desk work 4-5 hours a day, but requires rest periods.
- 40 = Moderate symptoms at rest. Moderate to severe symptoms with
exercise or activity; overall activity level reduced to 50%-70% of
expected. Not confined to house. Unable to perform strenuous
duties; able to perform light duty or desk work 3-4 hours a day, but
requires rest periods.
- 30 = Moderate to severe symptoms at rest. Severe symptoms with any
exercise; overall activity level reduced to 50% of expected. Usually
confined to house. Unable to perform any strenuous tasks. Able to
perform desk work 2-3 hours a day, but requires rest periods.
SEVERE
- 20 = Moderate to severe symptoms at rest. Severe symptoms with any
exercise; overall activity level reduced to 30%-50% of expected.
Unable to leave house except rarely; confined to bed most of day;
unable to concentrate for more than 1 hour a day.
- 10 = Severe symptoms at rest; bedridden the majority of the time.
No travel outside ofthe house. Marked cognitive symptoms preventing
concentration.
- 0 = Severe symptoms on a continuous basis; bedridden constantly;
unable to care for self.