vibration therapy?

[Juanita Vee]

Hi everyone, I'm just wondering if anyone has been recommended and/or tried a vibrating bed? I just saw a specialist and he has recommended a vibrating bed to (if I understand correctly) exercise my muscles (?). I am beyond disappointed with this recommendation, but I don't really know why, other than the fact that I need to buy a new bed.

I am willing to try anything to get better, why not the bed?! And all I have to do is lie on the bed and let it do all the work. I've been looking online at vibration therapy, it doesn't sound too inconceivable....? Any experience, ideas, opinions, information (pretty much anything!) are all very much appreciated and welcome!

 

[wabi-sabi]

I've never heard of vibrating beds, but I can't imagine it would do anything other than cause a lot of pain. I like the curl up with a lot of pillows and heating pad technique.

On the exercising your muscles front- you are not sick because you are out of shape and getting in shape, were that possible, would not cure you. That being said, there was a good thread recently about the benefits of cardiac rehab if you are able to do anything physical. Vibrating bed won't do that for you. I think it's a waste of time and money, but I'm getting a bit cynical at this point.

 

[Wishful]

I don't see how having a motor shake your muscles will exercise them. The power plant might get a bit more exercise...

It sounds like an update of those old vibrating belt machines sold to 'melt away fat!' No, getting vibrated doesn't burn off your own calories. Vibrating beds might have a use for improving blood flow for bed-bound patients, but they're not likely to do anything to improve muscle fitness.

As wabi-sabi suggested, the thread on carefully-planned exercise is worth looking at.

 

[Jyoti]

When my daughter was in the ICU and on a ventilator with life-threatening pneumonia, the physical therapist ordered a really really expensive vibrating bed to concuss her lungs to expel fluids. They couldn't get to her back to manually bang on her lungs because of all the tubes and the like. I wasn't sure how effective it could be in those circumstances and although I must admit to no actual knowledge about vibrating beds as a form of exercise, I have king-sized doubts that it might actually work as promised.

 

[xebex]

There is potential that a vibrating bed could help but maybe not in the traditional “exercise is all you need” BS mindset. There are people using the vital motion vibrating footrest to help with fibro with some success, it helps stimulate nerves and circulation, reducing pain. I think some people with ME are finding some help with it too. Potentially it could help with circulation which could help detox quicker and possibly get you moving more and even out of bed. All speculation and a lot of money to lay down if it makes your worse or does nothing. I’d rather go a sound healing route when so severe, both involve vibration, one is a hell of a lot cheaper.

 

[Rebeccare]

I remember reading once that astronauts had vibrating beds, and they had the potential to help prevent bone loss that comes from when you don't do any weight-bearing activity.

From everything people are saying here it sounds like having a vibrating bed could possibly help prevent some of the ill effects of being bed-bound such as muscle and bone loss. But will it cure your illness or replace exercise? If the cure was as easy as the 'Magic Fingers' then we'd all have vibrating mattresses by now!

 

[Pearshaped]

I cringe at the thought of something
that is vibrating.IDK your main symptoms but I can imagine the constant moving of your bed could make cognitive symptoms worse(?)and cost you a lot of money.
I also would recommend the thread of @Sushi.
She has put a picture of a leg press which is what I do pressing my feet in this angle against the wall without leaving the bed.But of course you would need a wall near your bed,couch or sofa.

 

[Sushi]

I remember reading once that astronauts had vibrating beds, and they had the potential to help prevent bone loss that comes from when you don't do any weight-bearing activity.

From everything people are saying here it sounds like having a vibrating bed could possibly help prevent some of the ill effects of being bed-bound such as muscle and bone loss. But will it cure your illness or replace exercise? If the cure was as easy as the 'Magic Fingers' then we'd all have vibrating mattresses by now!

The vibrating machines that are supposed to work as exercise and strengthen bones are ones that you stand on and the theory is that by constantly having to use your muscles to adjust balance you get good effects. There have been some studies. I have tried such a machine briefly but never could tell if it was helpful—though I’d think that you would have to stand or sit on it (where you are using muscles to adjust your balance) in order to get the “exercise” effect.

If you want to look at the really slow and medically supervised cardiac rehab that I have been doing, the thread is here: https://forums.phoenixrising.me/thr...rehab-and-doubled-my-exercise-capacity.79034/

 

[Rufous McKinney]

The vibrating machines that are supposed to work as exercise and strengthen bones are ones that you stand on and the theory is that by constantly having to use your muscles to adjust balance you get good effects.

Don't know about beds, but the vibrating machine one stands on- I have extensive experience with that.

Healthy people generally love the vibrating machine and athletes love it too.

That machine makes me horribly ill: and will cause full PEM later, after about 3 minutes on the machine(commonly, people were doing 10 - 20 minutes).

moves the lymph. probably moves Qi.

all the stagnation living in the stagnent lymph- thats my theory of what happens in my body. and whatever is also stagnent..in joints and muscles. So in my body, something stored- is released and I'm sick- typically extreme PEM for 72 hours.

So what is it that..makes me sick?

And what makes me sick if I don't move what so ever (the acupuncture treatment 72 hours PEM).

 

[xebex]

@Rufous McKinney dam paradoxical situation, we need to get the lymph moving to flush it out but flushing it out wakes all the toxins up and makes us feel worse, have you heard of the Perrin technique?

I find that really the only “exercise” I can do that doesn’t cause PEM is a simple twist. so I sit cross legged and twist my body, like a yoga twist, pretty much all other yoga moves especially ones that involve straining my core will cause PEM. I guess this gently releases the lymph and allows it to drain. Other moves possibly realise it faster thus more of a negative affect, I dunno, this dam disease is so confusing and frustrating!

 

[Rufous McKinney]

@Rufous McKinney dam paradoxical situation, we need to get the lymph moving to flush it out but flushing it out wakes all the toxins up and makes us feel worse, have you heard of the Perrin technique?

Yes...do some of that....

I managed to release the fluid in my right elbow (bursistis) by: stretching the heck out of my arms...wrists...elbow shoulder...I just: stretched it alot 2 nites in a row for 2 minutes and that bursitis (stagnation) left. I keep doing the stretch, and it feels good at 10:30 pm.

My left arm- which never had fluid- is still aching and tracking the inflamation cycle.

yes- flush the lymph and get to the other side ..I almost got there..before the stomach flu nailed me 2 months ago.

I went onto Chinese herbal tea for the lymph and got immediate rapid improvement (I think my cspinal fluid also starting draining better). Several large lymph nodes went down substantially, the neck inflammation improved...those herbs are VERY effective.

If toxins get released via...these methods ..then maybe thats why I got so severely ill...

There is some place one has to get thru, on detox and lymph and ...I seem to not really get to that other side..but would like to.

 

[xebex]

@Rufous McKinney I am very lucky in that I have managed to get rid of most of my detox symptoms. Now the only detox issues I have that I haven’t been able to fix is the detoxing after activity. Most of my poisoned feeling and brain fog was due to gluten and sugar. Diet and LDN fixed that, I do still have to be gluten free but can eat a small amount of sugar now. Onions make me feel poisoned too I have had some luck getting rid of that with brain retraining but it always seems to come back when I crash hard.

 

[Juanita Vee]

My instinct says don't do a vibrating bed. I definitely would be more interested in trying Sushi's program. Thanks for all the input!

@xebex - that's awesome to hear most of your detox symptoms are gone! I've been seeing cumin mentioned a lot on threads for PEM, have you tried that? I was thinking of giving it a try.

 

[xebex]

@Juanita Vee yes I’ve heard about the cumin and am going to look into it. I have Also had some recent help with amino acids, I have adhd like symptoms so looked into adhd protocols. tyrosine /phenylalanine seems to help delay or soften crashes for me. And also just eating a load of protein when I’m crashing also seems to take the edge off. There used to be a time when nothing would help but over time little things have started to give a little relief. I think I possibly have b vitamin/ methylation issue but every time I try them I feel worse, obviously something going on but its too complex and dangerous to deal with on my own. Cardio rehab could be an option sadly I am not sure I have the disciplined, I often feel better than I really am so can do more than I think then spend days to weeks in bed. Something that really helped me was EFT/tapping, which is essentially acupressure. Sounds like a load of woo but lifted me from 30% functional to around 60%.

 

[wabi-sabi]

I would love a cardio rehab program if I could find one.