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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Very good Huffpost article

Snowdrop

Rebel without a biscuit
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2,933
I can't remember all articles that have gone by so don't recall if there have been some bad press from Huffpost but I think in general they have been a friend to the ME community.

See article here: http://goo.gl/RrNUl9

Article title: The Faces of ME: Missing 7 years of my life

Quote from the article:

Generally, when I talk to people about Lilan and ME/CFS, they want to change the subject. I get it. It’s taken me an entire year to write this article – and it’s not just because it’s difficult to connect with Lilan due to her illness or because I’ve had other projects.

There is another reason.

Researching this disease is difficult. I read about a patient’s suffering, watch a documentary, or scan a research article, and I have to step away. I feel overwhelmingly sad. And worried. I start to worry that every little ache, pain, or bout of fatigue is a sign that I, too, will stumble into a darkened room, never to reemerge. While that may seem ridiculous, I know the truth: No one is immune. As Lilan recently wrote on her Tumblr page (after more than a year’s absence):

I did not know, so many years ago, what it means to watch the pieces of yourself get shaved away, the so-you-you-always-took-them-for-granted pieces, the closer-and-closer-to-the-core-pieces.

The loss is immeasurable.

And I am afraid.
 
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ScottTriGuy

Stop the harm. Start the research and treatment.
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Supporting our supporters.
 

Snowdrop

Rebel without a biscuit
Messages
2,933
Yes, thanks @Bob I think I'll bookmark it too to find it back for reference but it's always good to use titles for threads that help in a search. . . next time!

And I'll add it to the OP as well