Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
I've have not had a vascular study either but I think you are right that measuring vascular function to the brain is done by ultrasound.
Now don't laugh but I discovered this idea from a Scifi episode I recently watched.
Then I found this: http://my.clevelandclinic.org/servi...-testing/ultrasound-tests/vascular-ultrasound
I don't know if that's part of what you are trying to answer. Having someone here who's done the testing would be useful. I wonder under what conditions Dr's Dr's decide this type of test is necessary?
That type of test is commonly referred to as a Duplex Doppler Ultrasound or just Doppler ultrasound. It can detect flow velocity abnormalities due to occlusions or artery narrowing and is usually a screening procedure before resorting to an Angiogram.I've have not had a vascular study either but I think you are right that measuring vascular function to the brain is done by ultrasound.
Now don't laugh but I discovered this idea from a Scifi episode I recently watched.
Then I found this: http://my.clevelandclinic.org/servi...-testing/ultrasound-tests/vascular-ultrasound
I don't know if that's part of what you are trying to answer. Having someone here who's done the testing would be useful. I wonder under what conditions Dr's Dr's decide this type of test is necessary?
@redaxe Am bumping this question as I am also curious if anyone on PR has had vascular studies done (re: endothelial dysfunction or other vascular issues) and if so, what were the studies and what did they find?
I wonder if this is something that Ron Davis Open Medicine Foundation will test for. Aren't they looking to test their severe ME/CFS patients with every biological test under the sun?
I had a vascular study done and I think ME pasients with obvious blood flow problems should do it if your doctor might be able to do something that help you from the results
I remember doing and ultrasound but it was something else too, I dont know what its called. It was at a bigger hospital with specialist. My problem is that the veins are way to small and retracted. After reading on this forum I see that there is medicines that can help with this. I havent discussed it with my mainstreem doc yet because I am curious if the problem will go away after the treatment I have started with KDM. I always get a lot worse when its not hot summerweather, at the same time bodyparts get dark blue and inflammed. When this happen my veins are completely unavailable when taken bloodtests etc. I am thinking that ME pasients that suspects problems with their veins might get able to try some medicine for it if it gets detected, maybe that can reduce some symptoms@redaxe that is a good question and I don't remember seeing it as something they were testing for but am not certain.
@MadeleineKM was your study an ultrasound or something else and am curious how it changed or guided your treatment? Thanks!
I remember doing and ultrasound but it was something else too, I dont know what its called. It was at a bigger hospital with specialist. My problem is that the veins are way to small and retracted. After reading on this forum I see that there is medicines that can help with this. I havent discussed it with my mainstreem doc yet because I am curious if the problem will go away after the treatment I have started with KDM. I always get a lot worse when its not hot summerweather, at the same time bodyparts get dark blue and inflammed. When this happen my veins are completely unavailable when taken bloodtests etc. I am thinking that ME pasients that suspects problems with their veins might get able to try some medicine for it if it gets detected, maybe that can reduce some symptoms