- Messages
- 46
@SOC - i am alone. no family or support. no money to hire what i would need for caregiving. i strongly suspect i would have similar problems with it. it is a brutal protocol - blood work day before & day after the several hours short stay visit. i am getting hammered just existing right now.
i do know quite a few people now who have done infusions. wide variety of responses. it seems to be nicknamed "the hammer" with good reason.
everyone i know who has done infusions were higher functioning or had different viral profiles. the one person who also has really high cmv but was far higher functioning really struggled with them & couldn't finish. but got a good kick afterwards someone else with high hhv6 tolerated them fairly well but relapsed several months later.
all of them had vast support systems.
with me having such a strong reaction just over a month in on valcyte - would concern me about vistide as well. the one size fits all thing. i don't know how many people have gone through the infusions. i think it is a small data set, really. i got the sense that he didn't often see the type of reaction i had to valcyte. but i could be wrong about that...
if it is solely a question of drug side effects creating intolerable tinnitus - vistide is in the same category. i am still sensing in the aftermath of valcyte that it was potentially useful - both because of my initial response at the lower dose as well as the bit of lift i got when i stopped. in spite of the brain/T lingering effects.
i do know quite a few people now who have done infusions. wide variety of responses. it seems to be nicknamed "the hammer" with good reason.
everyone i know who has done infusions were higher functioning or had different viral profiles. the one person who also has really high cmv but was far higher functioning really struggled with them & couldn't finish. but got a good kick afterwards someone else with high hhv6 tolerated them fairly well but relapsed several months later.
all of them had vast support systems.
with me having such a strong reaction just over a month in on valcyte - would concern me about vistide as well. the one size fits all thing. i don't know how many people have gone through the infusions. i think it is a small data set, really. i got the sense that he didn't often see the type of reaction i had to valcyte. but i could be wrong about that...
if it is solely a question of drug side effects creating intolerable tinnitus - vistide is in the same category. i am still sensing in the aftermath of valcyte that it was potentially useful - both because of my initial response at the lower dose as well as the bit of lift i got when i stopped. in spite of the brain/T lingering effects.