Butydoc
Senior Member
- Messages
- 790
SOC, Have you used any anti-inflammatory drugs while on Valcyte.We switched about 18 months ago. We did it for two reasons, primarily. First, my daughter became fully functional (with meds), so I wanted her with doctors experienced with long-term health maintenance rather than acute phase illness. Dr Klimas and her colleagues have experience with maintaining functionality in both ME/CFS and HIV patients thoughout life changes. At 21 yo, I'm expecting my daughter to have a lot of life changes over the next 10 years.
Also, we felt that we had gotten all we were going to get out of Valcyte -- and it was a lot. We wanted to have a doc who would look at additional parts of the picture -- immune issues in particular.
We were very happy with what our previous specialist did for us. We just reached a point where we needed a doc with a bigger picture.
Dr. Montoya now uses anti-inflammatory on his patients. He feels the inflammatory component of the disease is damaging and needs to be addressed. I started on both Valcyte and colchine almost 10 mo ago with slow continued progress. He claims he has seen impressive results with this combination.
Gary