patient.journey
Senior Member
- Messages
- 443
Hey guys am on Valcyte since 5 months but in the last month i got a bronchitis that its not leaving me and its hurting enough that i cant live my day except if i am on my pain killers cause all my chest and back are hurting with body aches all over my body and my doctor cant figure why after 3 courses of AB it still here !!
Is there specific test i should run either than Mycoplasma, Chlamydia pn IGG, IGM and ASO cause i will run them tomorrow and after a week i will have a new sputum culture and throat culture too " all on me as my doctor doesnt know what to do i will have them in a lab out side the hospital" ?? and btw should i wait for the antibody tests after i finish my AB cause i just finished the AB today so would it change the Antibody results like the culture so i should wait for a week ?
My main problem is my WBC went from 10 to 5 in those 5 months and since 2 months or little more i start to get more and more infection and am talking about sore throat and Tonsils but with short course of 3-5 days of AB the problem was always resolved and i was doing great with my fatigue and my lymph node trouble and some other symptoms so i didnt want to stop taking Valcyte !
Now my doctor is afraid and he thinks i should stop the medication for a while and see what will happen when my WBC goes up and if my symptoms are due long term of heavy medication !! " am his first CFS case so he is lost"
Guys can i cut the treatment and get back to it ?? that would not make the body resistance for it ??
Should i buy some immune modulators like immunovir or any other brand you guys tried while am on my treatment so it will simulate my immune system ??
How can i rise my WBC as am taking every thing already multi Vitamins , Zinc , Garlic , Vitamin D some Chinese and Arabian herbs ??
Please guys am having a really bad time and i need your help
Is there specific test i should run either than Mycoplasma, Chlamydia pn IGG, IGM and ASO cause i will run them tomorrow and after a week i will have a new sputum culture and throat culture too " all on me as my doctor doesnt know what to do i will have them in a lab out side the hospital" ?? and btw should i wait for the antibody tests after i finish my AB cause i just finished the AB today so would it change the Antibody results like the culture so i should wait for a week ?
My main problem is my WBC went from 10 to 5 in those 5 months and since 2 months or little more i start to get more and more infection and am talking about sore throat and Tonsils but with short course of 3-5 days of AB the problem was always resolved and i was doing great with my fatigue and my lymph node trouble and some other symptoms so i didnt want to stop taking Valcyte !
Now my doctor is afraid and he thinks i should stop the medication for a while and see what will happen when my WBC goes up and if my symptoms are due long term of heavy medication !! " am his first CFS case so he is lost"
Guys can i cut the treatment and get back to it ?? that would not make the body resistance for it ??
Should i buy some immune modulators like immunovir or any other brand you guys tried while am on my treatment so it will simulate my immune system ??
How can i rise my WBC as am taking every thing already multi Vitamins , Zinc , Garlic , Vitamin D some Chinese and Arabian herbs ??
Please guys am having a really bad time and i need your help