hellytheelephant
Senior Member
- Messages
- 1,137
- Location
- S W England
Hi![Smile :) :)](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
I thought it would be good to have a thread of books that you have found helpful about ME and related topics- eg, POTS, chronic illness, dealing with pain etc. This would be a useful place for newbies to start, as well as a good resource for us veterans. Include:
Title
author,
what it is about ( i.e ' an introduction to anyone who has just been diagnosed', or ' a guide to living with chronic illness'..etc),
why you rate it.
who you think would like it (i.e ' those who are in the grieving process', 'those who are caring for a person with ME etc)
Apologies if I am repeating an idea, but I couldn't see it when I searched.
BTW: This is a resource and NOT a thread for promoting a particular treatment, or criticising other people's book choices!
Ok: I will start the ball rolling with a couple:
MANAGING CHRONIC FATIGUE SYNDROME AND FIBROMYALGIA - FEEL BETTER, TAKE CHARGE, REGAIN HOPE. By Bruce Campbell ( a previous ME sufferer)
It is a simple and practical introduction to how to pace, and can be used as an accompaniment to thee online course, or read alone. It is a good reference book for MEer, and carers, in terms of day to day advice. Some might find it too much CBTlike, but I have no time for CBT and I find it useful.
LIVING WELL WITH PAIN &ILLNESS- THE MINDFUL WAY TO FREE YOURSELF FROM SUFFERING. By Vidyamala Burch. This is a very down to earth account of creating coping strategies with pain, with the authors own long and painful journey with illness fully explored, as well as other accounts throughout.
I avoid the section on posture and stretching- but it is a book I come back to inspire me and anyone interested in the possibility of using meditation to help with pain and illness management. She is the creator of 'Breathworks' and I like the way she is not talking about 'cure' or changing anything- just 'Living Well With'
Helly x.![Smile :) :)](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
I thought it would be good to have a thread of books that you have found helpful about ME and related topics- eg, POTS, chronic illness, dealing with pain etc. This would be a useful place for newbies to start, as well as a good resource for us veterans. Include:
Title
author,
what it is about ( i.e ' an introduction to anyone who has just been diagnosed', or ' a guide to living with chronic illness'..etc),
why you rate it.
who you think would like it (i.e ' those who are in the grieving process', 'those who are caring for a person with ME etc)
Apologies if I am repeating an idea, but I couldn't see it when I searched.
BTW: This is a resource and NOT a thread for promoting a particular treatment, or criticising other people's book choices!
Ok: I will start the ball rolling with a couple:
MANAGING CHRONIC FATIGUE SYNDROME AND FIBROMYALGIA - FEEL BETTER, TAKE CHARGE, REGAIN HOPE. By Bruce Campbell ( a previous ME sufferer)
It is a simple and practical introduction to how to pace, and can be used as an accompaniment to thee online course, or read alone. It is a good reference book for MEer, and carers, in terms of day to day advice. Some might find it too much CBTlike, but I have no time for CBT and I find it useful.
LIVING WELL WITH PAIN &ILLNESS- THE MINDFUL WAY TO FREE YOURSELF FROM SUFFERING. By Vidyamala Burch. This is a very down to earth account of creating coping strategies with pain, with the authors own long and painful journey with illness fully explored, as well as other accounts throughout.
I avoid the section on posture and stretching- but it is a book I come back to inspire me and anyone interested in the possibility of using meditation to help with pain and illness management. She is the creator of 'Breathworks' and I like the way she is not talking about 'cure' or changing anything- just 'Living Well With'
Helly x.