** URGENT** Dr Byron Hyde

filfla4

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I am writing on behalf of ME Sufferers Malta. On this little island, the medical profession is still largely sceptical about this condition and there are no specialist doctors available.

We have learnt that Dr Byron Hyde is now in Sicily, just 60 miles away, following his series of lectures in Australia and Hong Kong. As a group we are desperately trying to bring him over to Malta to give a talk to local doctors. We have corresponded with him and he is willing to do it, but we have to find the sponsorship. I am in touch with the Medical Association of Malta and need to draft a formal request for their support this afternoon.

Can anyone refer me to OBJECTIVE information about Dr Hyde, that is not from Nightingale. Can you also provide me with any further information about his ideas on ME and any possible treatment protocols he recommends? I know that he believes in spect scans and body mapping....

I would appreciate any further information on him ASAP!!!!!!

Thanks for your help!
 

filfla4

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He may not be ideal for your purposes, if you wish to expand and educate on the retroviral research: this thread has a discussion on his views.
Thanks Jace. At this point I'm interested in anything we can get our hands on about Dr Hyde. It is not so much that we want to "expand and educate on the retroviral research". I realise that Dr Hyde made a statement in the week of the Washington Conference, refuting the retroviral links to ME. Here in Malta, we are still trying to establish the condition as a bona fide disease, rather than a psychological problem. I just question whether Hyde is the right man for the job.

I'd appreciate any further information anyone can give me at this point!!

Thanks!
 

filfla4

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He may not be ideal for your purposes, if you wish to expand and educate on the retroviral research: this thread has a discussion on his views.
Thanks Jace. At this point I'm interested in anything we can get our hands on about Dr Hyde. It is not so much that we want to "expand and educate on the retroviral research". I realise that Dr Hyde made a statement in the week of the Washington Conference, refuting the retroviral links to ME. Here in Malta, we are still trying to establish the condition as a bona fide disease, rather than a psychological problem. I just question whether Hyde is the right man for the job.

I'd appreciate any further information anyone can give me at this point!!

Thanks!
 

filfla4

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Thanks! As a group, we've been working flat out this summer to get some coverage. It's been a first for us that the mainstream media has actually covered the subject. I am just concerned that we managed to get this coverage due to the retroviral link. At the same time, we know that Hyde made his controversial statement and perhaps by bringing him over we will be giving out mixed messages, which is a disaster for PR.
 
Dr Hyde's presentations at the Invest in ME conference in London in 2007(available on DVD) would be an excellent information tool for anyone interested in dispelling the myths about this illness. Soild science, evidence and experience.
Good luck with it all in Malta - we're in this together!
 

busybee

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OK the books turned up.

diagnostic tests of ME
consider the following tests:
1.SPECT
2.Xenon SPECT
3.PET
4.Neuropsychological Testing

Theres heaps of other tests mentioned to rule out thyroid cardio etc but the above are specific to a ME diagnosis.

And I've just cried buckets full at his description of me and my mythologies :(
 

Sing

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Try www.mefmaction.net

You might contact Lydia Neilson of www.mefmaction.net which is, I believe, the leading advocacy and educational organization for ME-CFS in Canada. She worked for Dr. Hyde years ago, helping to pull together the textbook he edited and contributed to, along with many other specialists in this field.
 

filfla4

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Thanks Andrew. I think Dr Bell would be perfect but unfortunately, last I heard his lecture tour was cancelled for personal reasons. As a group we have decided not to bring Dr Byron Hyde over. It's a bit pity and involved much deliberation. However the audience here is extremely conservative and his profile didn't fit the bill.