viggster
Senior Member
- Messages
- 464
Highlights:
Confirms that RFA's (PLURAL) are coming soon:
"Revised NIH Response: The Trans-NIH ME/CFS Working Group is in the final stages of putting together a comprehensive research strategy for ME/CFS research that will include new RFAs. Clearly, as stated in the initial response, biomarker research will be critical to understanding the underlying causes and mechanisms of disease in ME/CFS. Until the new initiatives are in place, investigators can submit applications for peer review in response to any of the standing NIH grant mechanisms."
And the NIH is working to develop the back-end for a patient database that could be used by all researchers:
"Revised NIH Response: Working with the CDC and the ME/CFS clinical, research and patient community, NIH intends to develop Common Data Elements (CDEs) that will then be utilized for all clinical studies and clinical trials. In conjunction, a Data Coordinating Center (DCC) that would provide a standardized platform for storing and sharing data from clinical studies and clinical trials would significantly improve the ability to compare results across studies. The Trans-NIH ME/CFS Working Group is exploring the cost and feasibility of a DCC as part of the research strategy moving forward."
http://www.hhs.gov/advcomcfs/recommendations/08182015-agency-responses.html#
Confirms that RFA's (PLURAL) are coming soon:
"Revised NIH Response: The Trans-NIH ME/CFS Working Group is in the final stages of putting together a comprehensive research strategy for ME/CFS research that will include new RFAs. Clearly, as stated in the initial response, biomarker research will be critical to understanding the underlying causes and mechanisms of disease in ME/CFS. Until the new initiatives are in place, investigators can submit applications for peer review in response to any of the standing NIH grant mechanisms."
And the NIH is working to develop the back-end for a patient database that could be used by all researchers:
"Revised NIH Response: Working with the CDC and the ME/CFS clinical, research and patient community, NIH intends to develop Common Data Elements (CDEs) that will then be utilized for all clinical studies and clinical trials. In conjunction, a Data Coordinating Center (DCC) that would provide a standardized platform for storing and sharing data from clinical studies and clinical trials would significantly improve the ability to compare results across studies. The Trans-NIH ME/CFS Working Group is exploring the cost and feasibility of a DCC as part of the research strategy moving forward."
http://www.hhs.gov/advcomcfs/recommendations/08182015-agency-responses.html#
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