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- 9
Dear Reader
I write this post in the hope of finding wise counsel:
For 13 years I ate a restricted diet of Broccoli & Beans with Olive Oil and Bio-Live Yogurt. I drank mineral water and took numerous supplements.
In those 13 years I ate the same Yogurt because it was the only one I could tolerate, in February 2012 the manufacturer changed the genetic code of the Thermophilus bacteria and I had a neuro-immune allergic reaction. To get my old yogurt back I bought a minus 45 degree freezer and the manufacutrer of the bacteria sent me the old bacteria in dry ice. By the time I organised this I hadn't eaten a yogurt for 16 days, upon restarting the yogurt I had at first mild neuro-immune allergic reactions but by July my nervous system was seizing up, I was experiencing paralysis and tremors as my nervous system buckled under the yogurt. I had become allergic to the yogurt because of the 16 day gap.
I had to stop the yogurt which means I lost 76g of protein per day and all the carbs and various minerals plus 250 billion friendly flora.
I asked the lead CFS Doctor in Leeds if he could put me on IVIG, he refused and has referred me to a Gastroenterologist. IVIG looked to me like a possible way to calm down my immune system and give my nervous system a rest.
If I eat any new substance I have a negative neuro-immune response, I don't see how a gastroenterologist can make me tolerate any new substances or even get me back on my old yogurt.
I need urgent immunotherapy so that I can tolerate protein which is essential for my liver function. I have Gilberts Syndrome and a "null" GSTM1 gene, which means two of my Phase 2 liver pathways are sub par. I find if I don't ingest sufficient Glycine my bile production is poor and yeast becomes a problem.
I think I need a drug (treatment) to stop my immune system from attacking my nervous system, does anyone know of a suitable treatment or UK specialist I could consult?
Thank you
Simon Gordon
I write this post in the hope of finding wise counsel:
For 13 years I ate a restricted diet of Broccoli & Beans with Olive Oil and Bio-Live Yogurt. I drank mineral water and took numerous supplements.
In those 13 years I ate the same Yogurt because it was the only one I could tolerate, in February 2012 the manufacturer changed the genetic code of the Thermophilus bacteria and I had a neuro-immune allergic reaction. To get my old yogurt back I bought a minus 45 degree freezer and the manufacutrer of the bacteria sent me the old bacteria in dry ice. By the time I organised this I hadn't eaten a yogurt for 16 days, upon restarting the yogurt I had at first mild neuro-immune allergic reactions but by July my nervous system was seizing up, I was experiencing paralysis and tremors as my nervous system buckled under the yogurt. I had become allergic to the yogurt because of the 16 day gap.
I had to stop the yogurt which means I lost 76g of protein per day and all the carbs and various minerals plus 250 billion friendly flora.
I asked the lead CFS Doctor in Leeds if he could put me on IVIG, he refused and has referred me to a Gastroenterologist. IVIG looked to me like a possible way to calm down my immune system and give my nervous system a rest.
If I eat any new substance I have a negative neuro-immune response, I don't see how a gastroenterologist can make me tolerate any new substances or even get me back on my old yogurt.
I need urgent immunotherapy so that I can tolerate protein which is essential for my liver function. I have Gilberts Syndrome and a "null" GSTM1 gene, which means two of my Phase 2 liver pathways are sub par. I find if I don't ingest sufficient Glycine my bile production is poor and yeast becomes a problem.
I think I need a drug (treatment) to stop my immune system from attacking my nervous system, does anyone know of a suitable treatment or UK specialist I could consult?
Thank you
Simon Gordon