unrelenting flu feeling

[Haru]

Yes I had 24/7 horrible flu-like symptoms every day...........no breaks.......for 20 yrs. I no longer have those symptoms thanks to anti-viral protocol I've been on for a little over 2 and 1/2 yrs. I still have challenges..(nothing like before)............but no longer feel like death.

If I may ask what was your anti viral protocol ?

 

[Haru]

The flu feeling is my main symptom (and also PEM feels fluey for me). I have felt like I have a severe flu for 15 years every day, since December 2002. A severe flu (and a hangover) is how I try to explain my ME to other people.


In my personal case it has increased. I don't know what to do to bring it down.

Have you been able to control this flu like feelings yet ?

 

[Haru]

I am 16 months from onset. For me I had that daily in the beginning for months. It was horrid to say the least. I figured I would just stay that way. However after about 10 months it just started getting less and less. Now 16 months in when I get it...its way more mild and infrequent.

The only thing that helped me was rest and I hate that word because that's all I do. I dont work..I'm housebound I rest all the time !!

Hey how are you getting along with that flu feeling now?

 

[Nanni]

Yes I had 24/7 horrible flu-like symptoms every day...........no breaks.......for 20 yrs. I no longer have those symptoms thanks to anti-viral protocol I've been on for a little over 2 and 1/2 yrs. I still have challenges..(nothing like before)............but no longer feel like death.

Hi, I’m wondering about your anti viral protocol was. It’s hard for me to find a balance with my protocol and keeping my gut with in good bacteria. Detoxing that’s also an issue. I’ve been doing Oil of oregano, garlic, oil of olive, cit. c,. I also treat mthfr and leaky gut gastroparesis

 

[Pyrrhus]

This "sickness response" (which used to be called "sickness behavior") refers to "flu-like" symptoms that you normally would get with an acute infection, such as feeling feverish, unusual body aches, or alternating chills/sweating.

For me, this "sickness response" was an almost weekly event in the first few years of my ME, but it then faded. I haven't experienced any sickness response in over 10 years.

Michael vanElzakker often talks about the sickness response and its connection to the vagus nerve.

 

[perrier]

This "sickness response" (which used to be called "sickness behavior") refers to "flu-like" symptoms that you normally would get with an acute infection, such as feeling feverish, unusual body aches, or alternating chills/sweating.

For me, this "sickness response" was an almost weekly event in the first few years of my ME, but it then faded. I haven't experienced any sickness response in over 10 years.

Michael vanElzakker often talks about the sickness response and its connection to the vagus nerve.

You are very lucky it is gone; here it is unrelenting, and we don't know what to do. Thanks, any suggestions welcome. Even bought, Cytokine suppress, and not helping

 

[Jessie 107]

@perrier
My flu like symptoms disappeared when I started on Abilify . I take 2mg and have been taking it for about 18months.
I am bedbound but I can now do more than I could before including being able to have a bath,rest down stairs every afternoon, and lay down outside in the summer months.
Recently I have been able to stand up for 13 seconds and take 1 step.
All would have been impossible before Abilify.

 

[MonkeyMan]

You are very lucky it is gone; here it is unrelenting, and we don't know what to do. Thanks, any suggestions welcome. Even bought, Cytokine suppress, and not helping

I tried "Cytokine Suppress" also, and not only did it not help, it sent me into a crash that lasted for over a week.