Unfortunately, as you may already know, over the last 20 years the number of ME/CFS specialists in the US has fallen, as some physicians have either retired or died and were unable or unwilling to find and train replacements. Predictably, recent medical school graduates aren‘t interested in focusing their professional lives on a disease that is poorly understood, not taught in medical school, still controversial within mainstream medicine, and difficult to treat. The remaining ME/CFS specialists end up at full capacity as a result, with some having to close their practices to new patients.
Paul Cheney in North Carolina is semi-retired due to health problems, but I believe he is accepting new patients on a limited basis. But be aware that he is extremely expensive and he has his own somewhat unique theories about the illness. He doesn’t recommend or rely much on lab testing, but instead tends to prescribe medications that have tended to help his past patients have a somewhat better quality of life (i.e. sleep meds, B12 injections, magnesium injections). He doesn‘t prescribe autonomic function tests, SIBO tests, or in-depth autoimmune testing.
Susan Levine in New York might be accepting new patients or at least maintains a waiting list. She is familiar with the approaches used by David Kaufman and Nancy Klimas. But she has a bustling practice and doesn‘t really have the time to spend hours evaluating new patients.
David Systrom in Boston also is involved in diagnosis and treatment, primarily using his iCPET tests and skin biopsies for small fiber neuropathy. I believe he requires a referral letter from your local physician before accepting you as a new patient. Last I heard, he is scheduling many months out and now just makes treatment recommendations to your local physician. And his treatment recommendations primarily focus on drugs like mestinon, florinef, and midodrine to treat autonomic dysfunction, not other symptoms.
FWIW, the NOVA clinic was not particularly helpful when I went there 2 1/2 years ago. They ran some basic bloodwork, including their natural killer cell panel, and then provided me with fairly conservative treatment recommendations that included famvir and an array of vitamins and other supplements, none of which helped me.