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Hello all, this is my first post on this beautiful website that I have been lurking on for about a year now. Just wanted to toss out a broad spectrum thank you to everyone for their in depth info as well as contributing to a sense of community that is very uncommon, especially on the internet. Also excuse me for any errors, I am the farthest thing from an expert in this field, and my brain is chugging on fumes lol. Now for my strange situation..
About 3 years ago at age 16 i developed severe intolerances to food overnight. I had always had stomach aches, headaches, etc from food (wheat, dairy, soy, spicy foods) but this was different. One night eating dinner i became short of breath to the point where i almost fainted into my bowl of pasta. Since then I developed unrelenting acid reflux, and regurgitated most foods right up.
Then i went to see my lyme doc who diagnosed me with babesia, and put me on 500mg azithro and malarone (if memory serves me well). Along with abx, I changed my diet to all organic (eventually paleo) and immediately gerd and SOB disappeared. After being on it for a month, even while taking a probiotic (probifida), i started getting severe stomach pain at work and during my baseball games to the point where i had to come off of abx. Instantly all my symptoms came back at 1000% (developed resistance?) and my life has been hell ever since.
During this span of time I have learned that my genes (low glutathione, DAO insufficiency, mold susceptibility) combined with food sensitivities, extremely low secretory igA ,working in a metal shop, having heavy metals (oh the irony!) and glyphosate toxicity living in a moldy, radon infested home, and dealing with stress from family life (2 other sick family members) have led to my decline.
For awhile my docs got my gut back in check with xifaxan which got rid of my suspected sibo, while adding zinc, sialic acid, hcl and enzymes, fish oil, vitamin d, supplemental testosterone (mine was in 200's). We were about to tackle mold w/ binders when me and my mom stupidly pushed for abx to kill the lyme, since it worked so well in the past. After a month on abx in june while not taking probiotics except sacc boulardii, i developed severe shortness of breath, fatigue, brain fog, gerd, and severe severe food sensitivites. I was told the SOB was babesia die off so i stuck it out..
I have since moved out of my moldy house into my grandparents. I saw a little improvement but my gerd hadnt stopped so im currently on TPN 1950 calories. About a month ago i developed hypersensitivity to life itself (emf, most buildings, showers, fragrances, virtually all foods, etc). Now, everything i put on my skin, along with almost every single food and drink i put on my damn tongue, let alone traveling down my chute, gives me SEVERE shortness of breath to the point where i feel like im dying from lack of oxygen 24/7.
I can only have starkey water, sweet potatoes, squash, celery, carrots, cod, and bone broth along with enzymes, and these all still bother me, but theyre tolerable. All other foods and supplements give me horrible dyspnea, and i cant be treated bc i cant take anything, such as binders. I am sensitive to this house now too, so i am forced to eat outside so i can finish a meal without suffocating. Im at a complete loss (but very hopeful, dont know why). I can only do energy work now, such as acupuncture and NAET, but i know alone they cannot save me. Im not looking for advice, (but if you have any that would kick ass!) im mostly looking for comfort/assurance of future health.
THANK YOU AND GOD BLESS
About 3 years ago at age 16 i developed severe intolerances to food overnight. I had always had stomach aches, headaches, etc from food (wheat, dairy, soy, spicy foods) but this was different. One night eating dinner i became short of breath to the point where i almost fainted into my bowl of pasta. Since then I developed unrelenting acid reflux, and regurgitated most foods right up.
Then i went to see my lyme doc who diagnosed me with babesia, and put me on 500mg azithro and malarone (if memory serves me well). Along with abx, I changed my diet to all organic (eventually paleo) and immediately gerd and SOB disappeared. After being on it for a month, even while taking a probiotic (probifida), i started getting severe stomach pain at work and during my baseball games to the point where i had to come off of abx. Instantly all my symptoms came back at 1000% (developed resistance?) and my life has been hell ever since.
During this span of time I have learned that my genes (low glutathione, DAO insufficiency, mold susceptibility) combined with food sensitivities, extremely low secretory igA ,working in a metal shop, having heavy metals (oh the irony!) and glyphosate toxicity living in a moldy, radon infested home, and dealing with stress from family life (2 other sick family members) have led to my decline.
For awhile my docs got my gut back in check with xifaxan which got rid of my suspected sibo, while adding zinc, sialic acid, hcl and enzymes, fish oil, vitamin d, supplemental testosterone (mine was in 200's). We were about to tackle mold w/ binders when me and my mom stupidly pushed for abx to kill the lyme, since it worked so well in the past. After a month on abx in june while not taking probiotics except sacc boulardii, i developed severe shortness of breath, fatigue, brain fog, gerd, and severe severe food sensitivites. I was told the SOB was babesia die off so i stuck it out..
I have since moved out of my moldy house into my grandparents. I saw a little improvement but my gerd hadnt stopped so im currently on TPN 1950 calories. About a month ago i developed hypersensitivity to life itself (emf, most buildings, showers, fragrances, virtually all foods, etc). Now, everything i put on my skin, along with almost every single food and drink i put on my damn tongue, let alone traveling down my chute, gives me SEVERE shortness of breath to the point where i feel like im dying from lack of oxygen 24/7.
I can only have starkey water, sweet potatoes, squash, celery, carrots, cod, and bone broth along with enzymes, and these all still bother me, but theyre tolerable. All other foods and supplements give me horrible dyspnea, and i cant be treated bc i cant take anything, such as binders. I am sensitive to this house now too, so i am forced to eat outside so i can finish a meal without suffocating. Im at a complete loss (but very hopeful, dont know why). I can only do energy work now, such as acupuncture and NAET, but i know alone they cannot save me. Im not looking for advice, (but if you have any that would kick ass!) im mostly looking for comfort/assurance of future health.
THANK YOU AND GOD BLESS
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