I was referred by my GP to the specialist allergy dermatology clinic at guys for MCAS, they are supposed to be MCAS aware but this Dr Lawlor was probably the worst doctor I've seen in my entire life. I felt like I was speaking to a kid, I don't really care about what her voice is like but it was extremely strange and sounded like I was on a prank call at first. She was very eccentric/loopy, she didn't sound fit to be in a position as a specialist doctor. I also found out afterwards on the MCAS fb group that she had come out of retirement and many others had bad experiences with her (actually most a lot worse than mine).
She doesn't believe MCAS is real despite it already being proved and other docs in the clinic saying believing it's a real thing. I just got unlucky and saw the worst doctor they had there.
I also was concerned about my GPS referral to this clinic as it was a dermatology clinic and I knew they would only be able to looks at dermatological related things but my GP assured me that wouldn't be the case. Well turns out I was right and Dr lawlor was only interested in my dermatological symptoms. My GP also said they were the national referral centre for dysautonomia this was also untrue. This is not the first time my time has been wasted with a poor referral my GP also referred me to a neurologist for a second time who also wasn't able to help I told my GP standard neurologists wouldn't be helpful.
My follow up appointment for this clinic was supposed to be a month ago, well after months of waiting I get a call saying this appointment has be cancelled and rescheduled to august...
I also have issues with the Gastroenterology department in the NHS I had my appointment in late september, the specialist asked for basic blood tests and a small intestine permeability test for possible SIBO, well I never heard back from them as I guess tests were normal. So I email the specialist a few times and no reply. I call the hospital and somehow manage to get through to the specialist directly, he said his secretary will contact me for a follow up appointment. I never hear from his secretary and I follow up with emails and still nothing months later. What a joke and waste of time.... It's now May, all I wanted was to try an antibiotic like rifaximin but these fools make it such a headache to even get a simple thing like that. Precious time of my life wasted. For three years I've just wanted to try antibiotics to fix my gut issues and chronic infections but these people make it a nightmare.
Lesson learnt I won't bother with the NHS ever again...
