UK: Now, on R4 'Start the Week' - psych school approach to illness

[sarah darwins]

I've minimal experience of PR/journalism, but even something like a press release re IiME conference or similar might have a chance of getting some press attention.
Surely there must be a friend/relative of the 250k plus PWME, with relevant experience who could give some advice...

[/QUOTE]

Hi MEMum

Invest in ME, who are behind liME, certainly put out press releases, as I believe do all the major charities and action groups. But that's also the problem with press releases — everybody produces them, and news outlets are constantly hit with far more than they want or need. Most press releases are spiked with barely a glance.

My concern was more with the question of what does a journalist do when they're looking for background on ME/CFS. Which sources do they turn to? And who will those sources lead them to in the inevitable hunt for a reaction or opinion?

Sadly, few journalists make the effort to look past official sources, and we know the extent to which a certain school of thought dominates those sources right now. But some do. And it's really important that for those journalists the path to more open-minded researchers is as well signposted as the one which leads to the door marked "Psychogenic Theory".

 

[Sasha]

Invest in ME, who are behind liME

'IiME' is just short for 'Invest in ME', in the same way that 'MEA' is short for the 'ME Association'.

 

[sarah darwins]

'IiME' is just short for 'Invest in ME', in the same way that 'MEA' is short for the 'ME Association'.

Sorry, for some reason I thought the acronym was specifically for the conference. I'm still catching up with all this after years of passivity so I've got a lot more gaps than knowledge.