Ugh, @ukxmrv . That's insane.
Be clearer, buddy. Why were they weighted in favour of psychological treatments. What did they stand to gain? And 'unfair'? Come on... we can all do better.
-J
Hi Jaime, the UK legal system doesn't give enough weight to USA and medical specialists from abroad. I learned this from my own medical /legal case. They simply would not give their testimony a fair shot.
An English court (as an example) would like an English medical expert. Try bringing a Scots one in, let alone a USA one and se how far you will get.
There were large written submissions with evidence for the Judicial Review. You would have to read the entire set of them to get an idea.
Some "ME Charities" in the UK did not support the JR (stand up AFME and AYMES). Not all useful patients in the UK who could have given useful evidence supported the JR (Stand up NICE GDG patient reps apart from Tania). Not all patient support groups supported the JR (stand up those with close associations to Barts Hospital).
There are no high powered lawyers currently willing to act for PWME in the UK. I've tried.
If you think that you could have done better than the UK patients who brought the JR and who tried so hard than good on you. Unless you have had experience then it's just hot air and really derogatory to those who have tried for so long and sacrificed so much.
Don't make the mistake please of assuming we haven't thought your ideas through. It may sound easy from where you are. Yes it is insane but it is also painful and sensitive.
With the current attacks on state benefits for disabled in the UK many ME patients are being reassessed and their priority is on survival. We can't get "high powered" lawyers to act for us on this.
I'd like to see this change in the future of course. Some patients believe that this will only be in a European court - but that is another story.
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