I would be very interested in a doctor whom people thought would be good at excluding or diagnosing conditions that may have been missed, so I suppose they may not have to be a doc specialising in CFS/ME. I often read of people who were originally diagnosed with CFS/ME when it turns out they've had something else instead/as well, and I want to be as sure as I can that nothing's being missed with me.
I'm aware of Dr Myhill, and am considering being a 'long-distance' patient of hers. I think she has a lists of tests that she recommends are done before the CFS diagnosis is made, so if I can't find any other doc to see, I may just take this list along to my GP and try to make sure it's all been done.
Thanks very much.
Hi,
This was posted by someone else on another thread. They are the tests recommended by NICE for NHS patients. I haven't taken the list along to my GP yet to ensure I've been tested for all of this.
I've had a lot of testing and can tick off a lot of these from when I started collecting results.
My blood tests were done initially on a 3 month basis to monitor any changes but are now only done once a year or when I have an obvious problem but I do push for tests when I feel the need. I have FM / CFS so i should really look up any for FM as well.
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Investigations recommended by the UK National Institute of Clinical Excellence to exclude medical causes of chronic fatigue:
Tests that should usually be done:
urinalysis for protein, blood and glucose
full blood count
urea and electrolytes
liver function
thyroid function
erythrocyte sedimentation rate or plasma viscosity
C-reactive protein
random blood glucose
serum creatinine
screening blood tests for gluten sensitivity
serum calcium
creatine kinase
assessment of serum ferritin levels (children and young people only).
Additional serology tests that should only be done if the history suggests the possibility of a recent infection:
chronic bacterial infections, such as borreliosis
chronic viral infections, such as HIV or hepatitis B or C
acute viral infections, such as infectious mononucleosis (use heterophile antibody tests)
latent infections, such as toxoplasmosis, Epstein-Barr virus or cytomegalovirus.
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Myhill does 30 minute phone consults for 70! & obviously you have to pay for tests. So best to get anything covered that you can on the NHS first (get cvopies of the results) then go to her for more specialised testing.
Good luck