I wonder if Action for ME, the Bristol based charity who supplied advisors and observers for the PACE trial, although they now refuse to discuss their participation, will be attending?
The PACE Trial researchers stated:
https://www.facebook.com/actionforme/posts/10151346244973209
The PACE Trial researchers stated:
"Actigraphy is a measure of physical activity, measured by a wrist watch sized accelerometer, worn around the ankle continuously for a week. Before we started the trial, we were advised that the number and scope of the outcome measures were too great and that it might reduce the proportion of participants making it through to the end of the trial. Actigraphy was the obvious measure to reject because of its burden in time and effort required by participants. The patient charity advising us agreed that this would be sensible."
https://www.facebook.com/actionforme/posts/10151346244973209
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