This is really interesting. When I was in the hospital they were taking my pulse and my blood pressure constantly. My pulse was extremely high, especially right after I got back from going the bathroom. My blood pressure was usually normal, but sometimes the bottom number was a little high. When I went to sleep at night, my pulse dropped so far that the machines would go off and the nurses were constantly in there waking me up. After I got out, I went to a different doctor. The same thing happened--my pulse was extremely high. He took it a few times and asked me to sit up and lay down. Maybe I found the right doctor. When I was pregnant I had the same problems. When I stood up, I felt like I would black out. I actually did pass out once.
The symptoms for the second type of POTS seem to fit (Hyperadrenergic POTS). When I get up in the morning, my vision is blurry. I never feel like I am the right temperature. I have all over body twitches, especially when I lay down at night and try to sleep. When I lay in bed at night, I feel pressure in my chest. I am often nauseas. My face is always red, etc., etc. I don't remember anyone in my family, however, having the same problems. My uncle has a mitral valve defect. I wonder if that is something that runs in the family.
How would you get a doctor to believe you and test you for this? I would like to try the medicines they mention. Maybe mentioning my uncle's condition would help.
I wonder if a person was taking a norepinephrine reuptake inhibitor, would it make POTS worse?
Regarding this statement from the article: "While the cause of the PD form of POTS is unknown, there is increasing evidence that in some patients it is an autoimmune disorder (the body’s own immune system making antibodies against the autonomic nerves)." Is there a blood test available to see if a person has these antibodies?
