And only with loads of patients not producing data.There was a significant improvement for the 6 mwt for GET over SMC only.
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And only with loads of patients not producing data.There was a significant improvement for the 6 mwt for GET over SMC only.
There was a significant improvement for the 6 mwt for GET over SMC only.
Like the 'Mass resignations' from the JHP, recently reported; ie 3 out of 60+I think sometimes a "statistically significant" outcome is played by the media as if it were a clinically meaningful "significant improvement".
Perhaps their egos had a lot of mass, compared to the rest of the group?Like the 'Mass resignations' from the JHP, recently reported; ie 3 out of 60+
What, with Coyne a "remainer"?!Perhaps their egos had a lot of mass, compared to the rest of the group?
Perhaps their egos had a lot of mass, compared to the rest of the group?
yes this is one the UK charities should look at putting some funding to is there actually anywhere in the UK you can get this test done? presumably sport science people in the UK use this type of equipment all the time?Haven't checked but NICE do not appear to recognise the 2-day CPET test research/trials(?)
Maybe once the test protocols are more clearly defined further trials could be done/papers could be published and knock all GET research right out of the ball park(?)
eta:
http://www.shoutoutaboutme.com/testing/the-2-day-cpet-a-gold-standard-test-for-mecfs/
that Colin bloke from Sussex seems a likely candidate he posts on facebook welcoming GETSET etc@Valentijn
I assumed the 'patient representative' is an actual patient. Am I wrong? I can only think of one who would fit the bill. If it a patient, could it be the group leader/chair of the ME group of which Esther Crawley is medical adviser ? I have the impression he would be a PACE supporter.
that Colin bloke from Sussex seems a likely candidate he posts on facebook welcoming GETSET etc
Not the 2-day CPET but the one off testing is used all the time to assess fitness for surgery, and also to test heart and lung function generally.yes this is one the UK charities should look at putting some funding to is there actually anywhere in the UK you can get this test done? presumably sport science people in the UK use this type of equipment all the time?
In fact shouldn't they be testing people with a 2-day CPET before putting them on a GET programme (both in practice and on research trials) to assess if it is 'safe'?
Please NO! Too many people report they are made quite ill by the 2 day CPET test. I wouldn't want to do it - even now my health is rather better than at my worst. Too much risk, just to prove a point.
Not just to prove a point. It's got to be a better option than months of GET.
A few days ago I started taking TMG, after about 23 hours I'd come to the conclusion it was a dud, reports I'd read said people noticed a positive effect, if one was going to occur, within 15 minutes to a few hours. After 23 hours it seemed to do nothing to address the crippling PEM I had incurred as a result of about an hours trivial brain work a couple of days previously.Post-exertional fatigue, oh, if only. What I wouldn't give to just feel tired after too much exertion. Fatigue after exertion is what healthy people feel isn't it? They just don't have a soddin clue.