Snowdrop
Rebel without a biscuit
- Messages
- 2,933
@jodie100
Put it this way. Is there not anything that can be said by you about inaccuracies, inconsistencies coming from Esther Crawley or others. What about the nephrology conference where she was teaching others how to avoid being accountable by denying freedom of info requests by calling them vexacious. Or intimating that her job working as an ME researcher is comparable to someone being shot out of a cannon at a fun fair. All researchers should expect criticism of their research at some point. She was quite welcome by D Tuller to respond regarding the libelous blog she accused him of. Still waiting.
I haven't seen one good word from you on David Tuller.
In order for anyone in the UK to start getting appropriate research and treatment the motives of the BPS need to be exposed and their clinging to GET/CBT as the gold standard which it is by default there being no real treatment available (other than what one can get to treat symptoms if lucky) --they keep pushing the narrative because they want to prevent change from happening.
Advocacy will never be perfect. D Tuller has shown he's willing to be corrected when factual errors are pointed out. How about a little appreciation for the work and a raised voice for pointing out the egregious inaccuracies of PACE --you seem to be good at parsing out exact details. Where's the love for the ME community and all of us here who struggle every day. And we continue to struggle thanks in part to PACE.
Do you disagree with DT's overall conclusions on PACE?
Put it this way. Is there not anything that can be said by you about inaccuracies, inconsistencies coming from Esther Crawley or others. What about the nephrology conference where she was teaching others how to avoid being accountable by denying freedom of info requests by calling them vexacious. Or intimating that her job working as an ME researcher is comparable to someone being shot out of a cannon at a fun fair. All researchers should expect criticism of their research at some point. She was quite welcome by D Tuller to respond regarding the libelous blog she accused him of. Still waiting.
I haven't seen one good word from you on David Tuller.
In order for anyone in the UK to start getting appropriate research and treatment the motives of the BPS need to be exposed and their clinging to GET/CBT as the gold standard which it is by default there being no real treatment available (other than what one can get to treat symptoms if lucky) --they keep pushing the narrative because they want to prevent change from happening.
Advocacy will never be perfect. D Tuller has shown he's willing to be corrected when factual errors are pointed out. How about a little appreciation for the work and a raised voice for pointing out the egregious inaccuracies of PACE --you seem to be good at parsing out exact details. Where's the love for the ME community and all of us here who struggle every day. And we continue to struggle thanks in part to PACE.
Do you disagree with DT's overall conclusions on PACE?